I am 58yo female affected for 58 yrs. Second generation and one of 7 in multi-generational family. Father, myself, sisters, daughter, 2 nephews and 2 great-nephews. One of the sister's doesn't have as bad a symptoms and she had one child with it and ...
I am Quanh, 21 years old. I didn't discover Freeman Syndrome until genetic test this year 2021. I really would like to reach our to other people, how do they deal with life and hearing advices from others.
Good luck with your journey. Below is my p...
My paternal grandfather apparently had it. It was said that before he died his mouth opening was so narrow that he couldn't get a spoon past his teeth.
My father had it. He couldn't open his mouth very wide (although that didn't stop him from over...
