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There are 62 people in the Galactosemia map
Stories of Galactosemia
REBECCA MY ONLY BIG LOVE
my 17 yrs old daughter rebecca was born with cg..... to be finished
8/15/16, 11:20 AM by
TRANSPLANT AT 2 MONTHS OLD
Steven II was born on Sept 28, 2012. Although he was born a month early he shares his birth-date with his late maternal grandmother. When Steven was born, he was diagnosed with Galactosemia. On Thanksgiving night (Nov 23, 2012) Steven ...
5/28/17, 11:10 PM by
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POORLY MANAGED GALACTOSAEMIA
I have very poorly managed galactosaemia, therefore zero energy all the time. If I go whole hog with diet restrictions, should
10/30/16, 3:26 AM by
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Statistics of Galactosemia
people with Galactosemia have taken the SF36 survey. Mean of Galactosemia is 2440 points (68 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best.
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