Join the map
Do the survey
There are 89 people in the Galactosemia map
Which are the causes of Galactosemia?
How to live with Galactosemia? Can you be happy living with Galactosem...
Can people with Galactosemia work? What kind of work can they perform?
What are the latest advances in Galactosemia?
Stories of Galactosemia
REBECCA MY ONLY BIG LOVE
my 17 yrs old daughter rebecca was born with cg..... to be finished
8/15/16, 11:20 AM by
TRANSPLANT AT 2 MONTHS OLD
Steven II was born on Sept 28, 2012. Although he was born a month early he shares his birth-date with his late maternal grandmother. When Steven was born, he was diagnosed with Galactosemia. On Thanksgiving night (Nov 23, 2012) Steven ...
5/28/17, 11:10 PM by
Tell your story and help others
Tell my story
POORLY MANAGED GALACTOSAEMIA
I have very poorly managed galactosaemia, therefore zero energy all the time. If I go whole hog with diet restrictions, should
10/30/16, 3:26 AM by
Ask a question and get answers from other users.
Ask a question
Statistics of Galactosemia
people with Galactosemia have taken the SF36 survey. Mean of Galactosemia is 2440 points (68 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best.
Take the SF36 Survey
Find your symptoms soulmates
From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.
Add your symptoms and discover your soulmates map