Living with Gastroschisis. How to live with Gastroschisis?

Living with Gastroschisis

Gastroschisis is a congenital birth defect where a baby's intestines are outside of the body, usually due to a hole in the abdominal wall. Living with Gastroschisis can present unique challenges, but with proper care and support, individuals with this condition can lead fulfilling lives.

Medical Management

Medical management is crucial for individuals with Gastroschisis. This typically involves surgical intervention shortly after birth to place the intestines back into the abdominal cavity and close the hole in the abdominal wall. Following surgery, ongoing medical care is necessary to monitor the condition and address any complications that may arise.

Nutrition and Feeding

Nutrition and feeding are important considerations for individuals with Gastroschisis. Depending on the severity of the condition, the ability to absorb nutrients may be compromised. In some cases, a feeding tube or specialized diet may be necessary to ensure adequate nutrition. Working closely with a healthcare team, including a registered dietitian, can help develop a personalized nutrition plan.

Physical Development

Physical development may be delayed in individuals with Gastroschisis. Occupational and physical therapy can play a crucial role in promoting motor skills, muscle strength, and coordination. These therapies can help individuals reach their developmental milestones and improve their overall quality of life.

Emotional Support

Emotional support is essential for individuals living with Gastroschisis and their families. Coping with a chronic condition can be challenging, and it is important to have a strong support system in place. Connecting with support groups, counseling services, or online communities can provide a safe space to share experiences, seek advice, and find emotional support.

Education and Advocacy

Education and advocacy are vital for individuals with Gastroschisis and their families. Understanding the condition, its management, and available resources can empower individuals to make informed decisions about their healthcare. Advocating for oneself or a loved one can help ensure access to necessary medical care, educational accommodations, and support services.

Regular Medical Follow-up

Regular medical follow-up is crucial for individuals with Gastroschisis. This includes routine check-ups, monitoring growth and development, and addressing any potential complications. Staying proactive with healthcare appointments can help identify and address issues early on, leading to better outcomes.

Living a Full Life

While living with Gastroschisis may present challenges, it is important to remember that individuals with this condition can still lead fulfilling lives. With proper medical management, support, and self-care, individuals can pursue their goals, engage in activities they enjoy, and build meaningful relationships.

Remember, every individual's experience with Gastroschisis is unique, and it is important to consult with healthcare professionals for personalized advice and guidance.