- Guillain-Barre Syndrome
- Interviews
John's interview
How did all start?
Numbness of toes one January morning
Do you already have a diagnosis? How long did it take you to get it?
About a week in the hospital
For what medical specialties have you been treated? What has been the most useful specialty for your?
Neurologist, Urologist, Gastroenterologist, Infectious Disease Specialist and many more. All were VERY helpful.
What has been the most useful thing for you so far?
Accepting the use of a wheelchair.
What have been your biggest difficulties?
Accessibility and Income issues related to permanent disability.
How has your social and family environment reacted? Have your social or family relationships changed?
I am all alone in this world.
What things have you stopped doing?
Working, traveling, any hobbies that take money.
What do you think about the future?
Poor and alone.
So far, which years have been the best years in your life? What have you done during them?
Perhaps 1995 when I received my two doctorates.
What would you like to do if you didn’t have your condition?
Find a relationship and travel more.
If you had to describe your life in a sentence, what would it be?
Alone and lonely.
Finally, what advice would you give to a person in a similar situation?
Hopefully you will have family and close friends to turn to.
