Paralyze

Jan 11, 2020

By: Thessi

Year Condition Began: 2014


It started the end of nov 2014, 3 weeks after i had the Epstein Barr virus.

It started with my feet that was feeling numb, and in 5 days i was almost completly paralyzed.

As we told this to my house docter he thought it was the Epstein barr virus again.

But when my face was also paralyzed on one side we rush ourselfes to the hospital. And 1 day later i know i had Guillain Barre.

Im still wondering why, is it becus of the stress and the viral infection? before i got sick i worked 7 months almost everyday 12h a day. with a lot of stress daily!!

 

Got the immunoglobulines and it made me better fast. i could go home after 2 weeks , and go every day to the rehab, i thought i would get better in one to three, nobody told me how bad it would be, even the doctor said ' in june u can go back to work ! 

everyday rehab made me really tired, exhousting so i had a relaps... even worse than the first one. my voice was gone for a month.. i couldnt eat or drink ( almost, just at the border of that ) couldnt do anything no more.. 

In january with the relaps i also got Miller Fisher Syndrom.. so when i got up someone needed to hold me or i would fall down, my balance was gone completly. 

I also could not close my right eye ( it was open for months) 

After some months it got better...

i had daily headache for months.. and so so so tired from the smallest thing i did. even talking, laughing, singing was making me tired.

 

Now after 2 years and a halve im still not working !!! becus i still am verry tired from things i do.

when i talk to much or have to concentrate i have a big headache and i need to be left alone in the dark ! and try to sleep a bit. 

My right eye is still giving me troubles , specialy when im tired. and my right side of mouth ( lips ) is hanging when im tired.

It is verry hard.. and not everyone understand this...

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