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Haemophilia prognosis

What is the prognosis if you have Haemophilia? Quality of life, limitations and expectatios of someone with Haemophilia.

Haemophilia prognosis

Haemophilia is a genetic disorder that affects the body's ability to clot blood properly. It is typically inherited and primarily affects males, although females can also be carriers of the condition. There are two main types of haemophilia: Haemophilia A, which is caused by a deficiency of clotting factor VIII, and Haemophilia B, which is caused by a deficiency of clotting factor IX.



The prognosis for individuals with haemophilia has significantly improved over the years due to advancements in medical care and treatment options. With appropriate management, people with haemophilia can lead relatively normal lives. However, it is important to note that the severity of the condition can vary from person to person.



Early diagnosis and prompt treatment are crucial in managing haemophilia effectively. Regular monitoring of clotting factor levels and the use of clotting factor replacement therapy can help prevent and control bleeding episodes. This treatment approach aims to maintain clotting factor levels within a target range to minimize the risk of spontaneous bleeding.



While haemophilia is a lifelong condition, proper management and adherence to treatment plans can significantly improve the prognosis. It is essential for individuals with haemophilia to work closely with a specialized healthcare team, including haematologists, nurses, and physiotherapists, to develop a comprehensive care plan tailored to their specific needs.



With advancements in gene therapy, there is ongoing research and development to explore potential curative treatments for haemophilia. Gene therapy aims to introduce functional clotting factor genes into the body to correct the underlying genetic defect. Although still in experimental stages, these advancements hold promise for the future of haemophilia treatment.



In conclusion, while haemophilia is a lifelong condition, the prognosis has significantly improved with advancements in medical care and treatment options. Early diagnosis, prompt treatment, and proper management are key to minimizing the impact of haemophilia on an individual's life. Ongoing research in gene therapy offers hope for potential curative treatments in the future.


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Stories of Haemophilia

HAEMOPHILIA STORIES
Haemophilia stories
I am a top level basketballer who has played internationally and my Haemophilia rarely effects my life despite being a moderate and the high level of activity I do daily.
Haemophilia stories
Haemophilia has been a part of my life from the day I was born. When it came to my diagnosis it was a pretty simple process considering we already knew my mum and her dad had Haemophilia so I was confirmed at only a few weeks old, that is something I...
Haemophilia stories
_HI,_   _FROM MY CHILD HOOD I HAD SUFFERED A LOT , MOST OF MY TIMES I WAS  IN HOSPITALS AND LESS AT  HOME OR SCHOOL. MOREOVER MY ATTENDANCE DROP TO LESS THAN 50% DURING MY SCHOOL DAYS AND I MISSED OUT MANY EXAMS DURING THOSE DAYS. WHEN I GROW...
Haemophilia stories
At 7 months I was faced with a bent swollen left knee.My parents were baffled until they took me to a private medical practicioner and was immediately sent to the public hospital. It took two months for my dignosis when in the interim I was treated w...
Haemophilia stories
We are a family of hemophilia B. I am the mother, a carrier. We have two children who are both severe patients, Jason (born 2004) and Ruben (born 2006). They are attending the European School. My husband works for the European Commission in Luxembour...

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Mine is surfing. With medicine I am blessed to do many sports.

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