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Is it easy to find a partner and/or maintain relationship when you have HFE hereditary haemochromatosis?

People with experience in HFE hereditary haemochromatosis give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of HFE hereditary haemochromatosis. What are the possible difficulties in having a relationship?

Couple and HFE hereditary haemochromatosis
7 answers
Yes
There should generally be no impediment to a normal relationship and no cause for genetic counseliing re children. Once the gene has been detected, simple vigilance and testing can alert people at risk before any harm occurs and they can expect to lead a normal life.

Posted May 21, 2017 by Tony Moorhead 2051
No problem at all, but if both of you wishes to have children then it will be very useful to tell the partner that you have the hereditary form of haemochromatosis. And it's not difficult at all to have and maintain a relationship.

Posted Jun 4, 2017 by bewiki 4317
I think this depends on whether or not you are worried about your kids getting HFE. Having HFE itself won't impact your ability to date or maintain relationships, but if your kids having HFE is a concern it can be more difficult to weed out potential relational prospects since most people don't know if they have HFE or if they are a carrier for one of the mutations.

Posted Jul 22, 2017 by alohaitsaj 1501
It should not prevent relationships, except that it can cause chronic fatigue. If caught early, a normal life is possible.

Posted Jul 22, 2017 by Salena 2001
It is not difficult to find a partner.

Posted Jul 23, 2017 by Warbychick 1901
Yes. It should not be necessary to ask for a blood test. If two people however both know they are C282Y homozygous during their first dates they could consider to find other partners.

Posted Jul 25, 2017 by Ketil Toska 2051
Be honest open and communication is Paramount about everything, especially HFE

Posted Aug 2, 2017 by Natalie 2000

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HFE HEREDITARY HAEMOCHROMATOSIS STORIES
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Discover as one of the first in Bergen, Norway. Both my brothers were caught because of me. Become the first blodd donor with Haemochromatosis on Haukeland sykehus. Have 1round 130 accepted blood donations and the double for sience.. Very happy to b...
HFE hereditary haemochromatosis stories
I originally come from Kiel, Germany and moved to the UK in 1985. In 2005, I was finally diagnosed with Hamochromatosis which has affected my joints very badly. After having been venesected for about 6 months in 2005/2006, the arthritis got worse&nbs...
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Until March 2016 I did not know I had haemochromotosis, but the signs and symptoms have been there for three years chronic fatigue, aching joints, lack of libido and at times crankier than normal being a working mum of two teenage girls and a wife of...
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I was feeling sick and went to my GP, who said I need some ferritin tablets and calsuim, well I got it and drank it , like my Gp told me, the following day I started icthing, then it sarted out with big red marks on my arms and all over my body, phon...
HFE hereditary haemochromatosis stories
I was diagnosed three years ago after both my parents tested positive for the HHC genes. My Dad is a C282Y carrier but my mum is Homozygous with 2 copies of the H63D gene, which was sadly diagnosed far too late. Both my sister and myself are Compound...

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