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What are the latest advances in HFE hereditary haemochromatosis?

Here you can see the latest advances and discoveries made regarding HFE hereditary haemochromatosis.

Latest progress of HFE hereditary haemochromatosis
6 answers
Because there are currently no drugs involved in the treatment of haemochromatosis, there is limited interest from pharmaceutical industry.
However research around hepcidin may eventually lead to a simple drug treatment.
There is also a great deal of iron metabolism research happening in the scientific community.

Posted May 21, 2017 by Tony Moorhead 2051
To my personal knowledge it's still the 'old fashion' (since the middle ages ... LOL) way: donation of blood.

Posted Jun 4, 2017 by bewiki 4317
Unfortunately, there have been no advances and there is no treatment other than phlebotomies. Please help spread the word! HH is often overlooked as the disease leading to diabetes, hypothyroidism and organ failures.

Posted Jul 22, 2017 by Salena 2001
They are looking at medications that can prevent the body storing iron.

Posted Jul 23, 2017 by Warbychick 1901
The 6 genes involved have so far been classed into 4 main types of HH. The researchers now agree on a classification into Type 1-5. It is also recognized that Ferritin should be as low as 50 or even lower to keep the Transferrin Saturation below 45-50 %. Some countries have started to do phlebotomies looking more at Transferrin Saturation than the level of Ferritin. Researchers may now be on track of the "unknown factors" which may be contributing to the fact that some accumulate a lot of iron much faster than others (all other factors the same) and that some seems to develop damages/diseases and others seems to be almost unaffected. Mutations on the BMP6 gene are suspected to have a role in this.

Posted Jul 25, 2017 by Ketil Toska 2051
A variety of treatment options available including medical and natural means, stem cell research is showing promising signs. Treating signs and symptoms early rather than later helps quality of life dramatically

Posted Aug 2, 2017 by Natalie 2000

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World map of HFE hereditary haemochromatosis

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Stories of HFE hereditary haemochromatosis

HFE HEREDITARY HAEMOCHROMATOSIS STORIES
HFE hereditary haemochromatosis stories
Discover as one of the first in Bergen, Norway. Both my brothers were caught because of me. Become the first blodd donor with Haemochromatosis on Haukeland sykehus. Have 1round 130 accepted blood donations and the double for sience.. Very happy to b...
HFE hereditary haemochromatosis stories
Until March 2016 I did not know I had haemochromotosis, but the signs and symptoms have been there for three years chronic fatigue, aching joints, lack of libido and at times crankier than normal being a working mum of two teenage girls and a wife of...
HFE hereditary haemochromatosis stories
I was feeling sick and went to my GP, who said I need some ferritin tablets and calsuim, well I got it and drank it , like my Gp told me, the following day I started icthing, then it sarted out with big red marks on my arms and all over my body, phon...
HFE hereditary haemochromatosis stories
I was diagnosed three years ago after both my parents tested positive for the HHC genes. My Dad is a C282Y carrier but my mum is Homozygous with 2 copies of the H63D gene, which was sadly diagnosed far too late. Both my sister and myself are Compound...
HFE hereditary haemochromatosis stories
I was feeling achy in joints and tired for few years before diagnosis,gene test not offered or mentioned when living ln England until when came to Ireland, GP ordered gene test after blood test and talk showed signs of haemachromotosis.I would recomm...

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