What is the life expectancy of someone with HFE hereditary haemochromatosis?

Life expectancy of people with HFE hereditary haemochromatosis and recent progresses and researches in HFE hereditary haemochromatosis

HFE hereditary haemochromatosis life expectancy
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The severity of the damage in the organs, especially the liver, is a determining factor for the life expectancy of a patient with Hereditary Hemochromatosis. This is a condition that causes the body to absorb and store too much iron, which accumulates in organs such as the liver, pancreas, heart, pituitary gland, or joints, causing severe years and even death. Most people with hereditary hemochromatosis have a normal life expectancy, in spite of endure symptoms such as fatigue, pigmentation of the skin or pain in the upper part of the stomach. However, the survival may be shortened in people who develop cirrhosis or diabetes mellitus.
10 answers
Most people diagnosed with haemochromatosis can expect to live a normal life-span if they maintain their treatment throughout their life.

Posted May 21, 2017 by Tony Moorhead 2051
Quasi normal life if you follow the treatment of you doctor/specialist.

Posted Jun 3, 2017 by bewiki 4317
If treated properly one can have a normal life expectancy if HH is caught in time

Posted Jul 22, 2017 by Tina 1501
Provided you keep your iron levels within normal ranges, you should be able to have a normal lifespan.

Posted Jul 22, 2017 by alohaitsaj 1501
Normal, if caught before organ damage or cancer has developed.

Posted Jul 22, 2017 by Salena 2001
Life expectancy is same as anyone else.

Posted Jul 23, 2017 by Warbychick 1901
The same as for everyone else.

Posted Jul 25, 2017 by Ketil Toska 2051
Studies indicate that persons with symptomatic haemochromatosis have somewhat reduced life expectancy compared to the general population. This is mainly due to excess mortality from cirrhosis and liver cancer. Patients who were treated with phlebotomy lived longer than those who weren't. Patients without liver disease or diabetes had similar survival rate to the general population. Stem cell research is showing promising signs

Posted Aug 2, 2017 by Natalie 2000
With regular venesections health checks and good eating habits expect to live a long and happy life

Posted Apr 4, 2018 by John 100

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HFE hereditary haemochromatosis stories
Discover as one of the first in Bergen, Norway. Both my brothers were caught because of me. Become the first blodd donor with Haemochromatosis on Haukeland sykehus. Have 1round 130 accepted blood donations and the double for sience.. Very happy to b...
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Until March 2016 I did not know I had haemochromotosis, but the signs and symptoms have been there for three years chronic fatigue, aching joints, lack of libido and at times crankier than normal being a working mum of two teenage girls and a wife of...
HFE hereditary haemochromatosis stories
I was feeling sick and went to my GP, who said I need some ferritin tablets and calsuim, well I got it and drank it , like my Gp told me, the following day I started icthing, then it sarted out with big red marks on my arms and all over my body, phon...
HFE hereditary haemochromatosis stories
I was diagnosed three years ago after both my parents tested positive for the HHC genes. My Dad is a C282Y carrier but my mum is Homozygous with 2 copies of the H63D gene, which was sadly diagnosed far too late. Both my sister and myself are Compound...
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I was feeling achy in joints and tired for few years before diagnosis,gene test not offered or mentioned when living ln England until when came to Ireland, GP ordered gene test after blood test and talk showed signs of haemachromotosis.I would recomm...

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