Living with HFE hereditary haemochromatosis. How to live with HFE hereditary haemochromatosis?

Can you be happy living with HFE hereditary haemochromatosis? What do you have to do to be happy with HFE hereditary haemochromatosis? Living with HFE hereditary haemochromatosis can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with HFE hereditary haemochromatosis

Living with HFE hereditary haemochromatosis
9 answers
If the condition is detected and treated before any long term harm occurs, people can expect to lead a normal, happy life.
Treatment is generally extremely effective and will generally reverse or alleviate symptoms. Treatment is also simple, inexpensive and drug-free. Maintenance normally involves just one blood donation every three to six months.

Posted May 21, 2017 by Tony Moorhead 2051
Of course you can do live happy with HFE hereditary haemochromatosis, when you take part in a program as like blood giving until your iron/ferritin is alright.

Posted Jun 3, 2017 by bewiki 4317
Yes you can. Follow your low iron diet and get regular checkups bloodwork and therapeutic phlebotomy when needed

Posted Jul 22, 2017 by Tina 1501
When you first get diagnosed, it's hard to be happy. There's definitely an adjustment period to realizing you have a disorder you will have to monitor for the rest of your life to ensure you stay healthy. To keep stress levels lower with this, regular monitoring to give yourself peace of mind that your iron levels are within normal ranges can help. If you have a fear of needles, learning to overcome that or finding coping mechanisms (for me it was getting my dog certified as an ESA so she could go to treatments with me) helps. As I write this, I'm still in the early stages of learning to live with HFE, but I'm sure as time goes on this will just become a new normal and I'll learn to be happy in spite of constant needle pokes and having to make sure I'm taking care of myself.

Posted Jul 22, 2017 by alohaitsaj 1501
If caught early and treated, you can lead a normal life. If organ damage has occurred before diagnosis, quality of life would depend upon the severity of impairment. Untreated, HH is fatal.

Posted Jul 22, 2017 by Salena 2001
Eat healthy and exercise and you will ge happy.

Posted Jul 23, 2017 by Warbychick 1901
Yes once the Serum Ferritin is low and the Transferrin Saturation is low and you have the other symptoms or consequential damages/diseases under control you will live a happy life.

Posted Jul 25, 2017 by Ketil Toska 2051
Balanced diet, regular exercise maintain tolerable pain

Posted Aug 2, 2017 by Natalie 2000
Im having issues with this one.

Posted Sep 8, 2017 by Eileen 700

Living with HFE hereditary haemochromatosis

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World map of HFE hereditary haemochromatosis

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Stories of HFE hereditary haemochromatosis

HFE hereditary haemochromatosis stories
Discover as one of the first in Bergen, Norway. Both my brothers were caught because of me. Become the first blodd donor with Haemochromatosis on Haukeland sykehus. Have 1round 130 accepted blood donations and the double for sience.. Very happy to b...
HFE hereditary haemochromatosis stories
Until March 2016 I did not know I had haemochromotosis, but the signs and symptoms have been there for three years chronic fatigue, aching joints, lack of libido and at times crankier than normal being a working mum of two teenage girls and a wife of...
HFE hereditary haemochromatosis stories
I was feeling sick and went to my GP, who said I need some ferritin tablets and calsuim, well I got it and drank it , like my Gp told me, the following day I started icthing, then it sarted out with big red marks on my arms and all over my body, phon...
HFE hereditary haemochromatosis stories
I was diagnosed three years ago after both my parents tested positive for the HHC genes. My Dad is a C282Y carrier but my mum is Homozygous with 2 copies of the H63D gene, which was sadly diagnosed far too late. Both my sister and myself are Compound...
HFE hereditary haemochromatosis stories
I was feeling achy in joints and tired for few years before diagnosis,gene test not offered or mentioned when living ln England until when came to Ireland, GP ordered gene test after blood test and talk showed signs of haemachromotosis.I would recomm...

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