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Hereditary multiple exostoses
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Hereditary multiple exostoses
Advice
Advice of Hereditary multiple exostoses
I have to wear everyday a morfine plaster and change it every 3rd day.
by Kaya
Pain management through heat.
by Mark
Tysabri infusions
by Debara
Drive
by Niall
My Family- My father is also affected by HME, and has helped me with the condition.
by Jordan-Charlotte
surgery
by teri
My life is limited because my condition
by Christopher
keeping active
by Jim
Surgery to remover osteochondroma on fingers
by Barrett
acceptance the difference between people and difference is beautiful
by Zahra
Accepting my disease as a part of me
by Sydney
The corrective and tumor removal surgeries I had between the ages 10-16.
by Roxanne
2 years of physiotherapy
by KeriHunter26
Je pratique la méditation pleine conscience
by Marie-Claude
Know that you are different
by Bev Foster
I follow school online, and now I can be most of the time available in class.
by Kaya
The power of communication through FB
by Mark
Aqua yoga
by Debara
Mentally dealing with intense daily pain head on...and winning
by Niall
My Partner- I was told I was disgusting, and people gagged at my scars...he makes me feel beautiful.
by Jordan-Charlotte
finding an internet face book group
by teri
Luckily, my two kids do not have it.
by Christopher
keeping active
by Jim
Staying active
by Barrett
what is important is personality and kindness and decency not the appearance.
by Zahra
Life improving surgery
by Sydney
Being active especially strengthening and balance activities. (Yoga, ballet, swimming and dance)
by Roxanne
My mam being by my side the entire time
by KeriHunter26
Je prends plus de temps pour moi
by Marie-Claude
Understand the pain
by Bev Foster
Having someone I can talk too.
by Kaya
The power of the World Wide Web
by Mark
Horseback riding
by Debara
Omega 3 Krill Oil
by Niall
My Friends- I have few but the ones I do have, help me to feel safe.
by Jordan-Charlotte
growing old and mellow
by teri
I've had 11 surgeries and to malignant transformations because of my condition.
by Christopher
keeping active
by Jim
Tylenol for pain
by Barrett
accepting my true self helped me live more happy and confident. even now i can help others.
by Zahra
Taking better care of my body. Physically and mentally
by Sydney
Anti-inflammatory diet.
by Roxanne
Support groups on social media
by KeriHunter26
Je tente d'éliminer les sources de stress
by Marie-Claude
Overcome the stigma
by Bev Foster