Is it advisable to do exercise when affected by Hereditary multiple exostoses? Which activities would you suggest and how intense should they be?

Hereditary multiple exostoses (HME), also known as multiple hereditary exostoses (MHE), is a rare genetic disorder characterized by the development of multiple benign bone tumors called osteochondromas. These tumors typically grow near the growth plates of long bones, such as the arms and legs. While HME can vary in severity, it often leads to skeletal deformities, joint problems, and reduced mobility.

When it comes to exercise and physical activity for individuals affected by HME, it is important to approach it with caution and under the guidance of healthcare professionals. While exercise can provide numerous benefits, including improved strength, flexibility, and cardiovascular health, it is crucial to consider the potential impact on the affected bones and joints.

Consulting with a healthcare professional who is familiar with HME is essential before starting any exercise program. They can assess the individual's specific condition, evaluate the severity of the disease, and provide personalized recommendations based on their unique needs and limitations.

That being said, there are several types of exercises that are generally considered safe and beneficial for individuals with HME:

1. Low-impact aerobic exercises: Activities such as walking, swimming, and cycling can help improve cardiovascular fitness without putting excessive stress on the joints. These exercises are generally well-tolerated and can be adjusted to the individual's fitness level.



2. Range of motion exercises: Gentle stretching and range of motion exercises can help maintain flexibility and prevent joint stiffness. These exercises should be performed within a pain-free range and should not exacerbate any existing joint problems.



3. Strengthening exercises: Strengthening the muscles around affected joints can provide support and stability. However, it is important to avoid exercises that put excessive stress on the affected bones or joints. Resistance training with light weights or resistance bands, under the guidance of a healthcare professional, can be beneficial.



4. Balance and proprioception exercises: HME can affect balance and coordination, so incorporating exercises that improve these aspects can be beneficial. Simple activities like standing on one leg or using balance boards can help enhance stability and reduce the risk of falls.

Intensity and duration of exercise should be individualized based on the person's overall health, fitness level, and the severity of their HME. It is important to start slowly and gradually increase the intensity and duration of exercise over time, while closely monitoring any discomfort or pain.

Regular monitoring and follow-up with healthcare professionals are crucial for individuals with HME. They can assess the impact of exercise on the condition, provide guidance on adjusting the exercise program as needed, and address any concerns or complications that may arise.

In conclusion, exercise can be beneficial for individuals affected by Hereditary multiple exostoses, but it should be approached with caution and under the guidance of healthcare professionals. Low-impact aerobic exercises, range of motion exercises, strengthening exercises, and balance and proprioception exercises are generally considered safe and beneficial. The intensity and duration of exercise should be individualized, and regular monitoring by healthcare professionals is essential. Remember to always consult with a healthcare professional familiar with HME before starting or modifying any exercise program.