14

How do I know if I have Hereditary multiple exostoses?

What signs or symptoms may make you suspect you may have Hereditary multiple exostoses. People who have experience in Hereditary multiple exostoses offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Hereditary multiple exostoses?
2 answers
Most of the time HME is Hereditary so one of the parents are affected. They have bony lumps around their body. It is autosomal dominant but it varies from very mild to severe. It all starts when the child is growing up. some small bony tumors can be seen especially around the knee, shoulder, pelvic. Before that pain is the only sign. Almost everybody with HME is diagnosed from 3 to 12.

Posted Nov 30, 2017 by Zahra 1950
You will start to form bumps on your joints being at the your fingers on your knuckles your wrists your elbows your shoulder blades my son has one on his collarbone you can get them on literally any joint hips knees near the knees on the tibia and fibia anywhere

Posted Dec 1, 2017 by Diana 920

Do I have Hereditary multiple exostoses?

Hereditary multiple exostoses life expectancy

What is the life expectancy of someone with Hereditary multiple exostoses?

1 answer
Is Hereditary multiple exostoses contagious?

Is Hereditary multiple exostoses contagious?

3 answers
ICD9 and ICD10 codes of Hereditary multiple exostoses

ICD10 code of Hereditary multiple exostoses and ICD9 code

Is Hereditary multiple exostoses hereditary?

Is Hereditary multiple exostoses hereditary?

1 answer
Natural treatment of Hereditary multiple exostoses

Is there any natural treatment for Hereditary multiple exostoses?

2 answers
Living with Hereditary multiple exostoses

Living with Hereditary multiple exostoses. How to live with Hereditary mult...

1 answer
Hereditary multiple exostoses symptoms

Which are the symptoms of Hereditary multiple exostoses?

2 answers
Hereditary multiple exostoses jobs

Can people with Hereditary multiple exostoses work? What kind of work can t...

3 answers

World map of Hereditary multiple exostoses

Find people with Hereditary multiple exostoses through the map. Connect with them and share experiences. Join the Hereditary multiple exostoses community.

Stories of Hereditary multiple exostoses

HEREDITARY MULTIPLE EXOSTOSES STORIES
Hereditary multiple exostoses stories
MHE from age 3
Hereditary multiple exostoses stories
Oh dear.... now I have to write a story.
Hereditary multiple exostoses stories
There are many different ways to live your life. There are many different walls put in front of you throughout your life. Some people lose a family member, others a love but few have to battle against themselves and the misfortune of an illness. Havi...
Hereditary multiple exostoses stories
I have "spontaneous" MHE. No one else in my family has been identified as having MHE. We first discovered it when I was 4 years old, and I have had 17 surgeries.  I have actually done really well most of the time and I have a very active life! Most ...
Hereditary multiple exostoses stories
I got HME from my momther and was diagnosed at the early age of three. I'm shot in height and have short arms and legs. I was treated at A.I. DuPont for my entire childhood. The doctors wanted to operate nemourous times, but being scared I refused. W...

Tell your story and help others

Tell my story

Hereditary multiple exostoses forum

HEREDITARY MULTIPLE EXOSTOSES FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map