Can people with Hereditary multiple exostoses work? What kind of work can they perform?

See how people with experience in Hereditary multiple exostoses give their opinion about whether people with Hereditary multiple exostoses can work and what kind of jobs are more appropriated for people with Hereditary multiple exostoses

Can people with Hereditary Multiple Exostoses (HME) work?

Yes, individuals with Hereditary Multiple Exostoses (HME) can certainly work and lead fulfilling professional lives. While HME is a genetic condition that affects the growth of bone tumors or bony protrusions called exostoses, it does not necessarily limit a person's ability to engage in various types of work.

What is Hereditary Multiple Exostoses (HME)?

Hereditary Multiple Exostoses, also known as Multiple Osteochondromas, is a rare genetic disorder characterized by the development of multiple benign bone tumors or exostoses. These exostoses can occur on the long bones, such as the arms and legs, as well as on the flat bones, such as the pelvis and shoulder blades. HME is typically inherited in an autosomal dominant manner, meaning that a child has a 50% chance of inheriting the condition if one parent is affected.

How does Hereditary Multiple Exostoses (HME) affect work?

The impact of HME on a person's ability to work varies depending on the severity and location of the exostoses. Some individuals with HME may experience minimal symptoms and have exostoses that do not interfere with their daily activities or work. Others may have more significant challenges due to the size, number, or location of the exostoses.

Types of work suitable for individuals with Hereditary Multiple Exostoses (HME)

While the specific limitations and abilities of individuals with HME may differ, there are various types of work that can be suitable for them:

Office-based jobs: Many individuals with HME can excel in office-based jobs that involve administrative tasks, data entry, customer service, or other desk-oriented roles. These jobs typically do not require physical exertion or prolonged standing.

Professional careers: Individuals with HME can pursue professional careers in fields such as law, finance, accounting, marketing, or consulting. These careers rely more on intellectual abilities and do not necessarily require physical strength or mobility.

Creative professions: Careers in art, design, writing, or other creative fields can be well-suited for individuals with HME. These professions often allow for flexible working conditions and can accommodate physical limitations.

Technology-related jobs: The technology industry offers a wide range of opportunities that can be suitable for individuals with HME. Roles such as software development, graphic design, digital marketing, or IT support can be pursued with success.

Entrepreneurship: Some individuals with HME may choose to start their own businesses or work as freelancers, allowing them to have more control over their work environment and schedule.

Workplace accommodations for individuals with Hereditary Multiple Exostoses (HME)

Employers are legally obligated to provide reasonable accommodations to individuals with disabilities, including those with HME. These accommodations can help individuals with HME perform their job duties effectively. Some possible workplace accommodations for individuals with HME may include:

Providing ergonomic workstations or adjustable furniture to accommodate physical limitations.

Allowing flexible work hours or remote work options to manage medical appointments or fatigue.

Modifying job tasks or providing assistive devices to minimize physical strain.

Ensuring accessibility in the workplace, such as ramps or elevators, for individuals with mobility challenges.

Creating a supportive and inclusive work environment that fosters understanding and acceptance.

Conclusion

In summary, individuals with Hereditary Multiple Exostoses (HME) can certainly work and contribute to various industries and professions. While the impact of HME on work may vary, there are numerous job opportunities available that can accommodate the physical limitations associated with the condition. With appropriate workplace accommodations and support, individuals with HME can lead successful and fulfilling careers.

Diseasemaps

Yes of course, the tumor didnt affect the brain, so the job possibility for people who diagnosed with Hereditary Multiple Exostoses are a lawyer, a jugde, a doctor, a teacher, and many more (Professional jobs)

Posted Sep 12, 2017 by Helmina Batubara 700

I think most of the people with HME can work in any field they want. Maybe ballet would be abit hard and some other sports. But when you start from childhood you are as good as others.
My brother's condition is more severe than mine and he has some limitations because he can not flex properly. Mountain climbing, walking to long, jumping and some other works would be hard but not imposible for him.

Posted Nov 30, 2017 by Zahra 1950

Yes some people can work with no problem and then being me that some that can't the father of my children he has worked since he was 16 he's 32 now so there really isn't no limitations if you think you can do it you can do it

Posted Dec 1, 2017 by Diana 920

There will be many variations but in general repetitive movements are bad. I could lift heavy objects but certain repetitions like painting the side of a wall or a job in a donut shop moving each donut from the cutter to a tray tore me up and others will not understand the difference. Most exercise routines involve heavy repetitions and there is a need to do things that accomplish that without the repetition rather than ignoring the injury or not going there at all. Again those who are experts in that for most folk will not understand the problem.

On the other hand, observing and understanding the world not involving human actions I find myself very much better at than what I see around me. Therefore as much preparation in Science and Engineering as possible, with a side of Art as that too has need of that sort of seeing.

From the age of six, I sought to learn and remember those things that were not fad or opinion but would remain true no matter how or when you looked at it. Everything else leaked in but that was my focus, as well as learning/developing a logic that could test the probability of something being true by approaching it from several directions.

Posted Jul 24, 2020 by Bob D 1200