Being aware of my limitations
Healthy Support network of family and friends
Getting support from my family
I take baclofen.
My wife and family understand my disease more
Botox - injected every 3 months in neck, one injection in 2015 to improve colon/bowel function.
Supportive family/friends
Família
becoming a wife, mum and now a nanna
Thermal underwear in colder months
Try to maintain a low stress level
Voluntary work
I have become involved with The Spastic Paraplegia Foundation whereby I am made more aware of the progress being made toward a cure. There is light at the end of the tunnel.
Fisioterapia
Las sesiones de rehabilitacion
Comunicazione
Pool exercise
Be your own advocate you are no one else responsibility
Staying active
We are in this together
CoQ10
Getting over my anxiety
Hacer ejercicios, tomar medicación indicada para retrasar los efectos
Good support system
nothing
working part time
Fisioterapia
La afectada es mi hija
Loosing 110 pounds
Rollator
Avoid caffeine at all costs. Eat a natural, non pre-manufactured foods. As with any health advice, eating healthy improves not only how you feel physically but mentally as well.
Protamin supplement
I refuse to grow up
cree paraparesia espástica familiar Guatemala en Facebook. En forma de encontrar alguien mas, si no tambien a personas que tienen condiciones diferentes.
Going out and getting fresh air as much as possible.
communication - knowing i can talk to my loved ones about my struggles and feelings, i learnt this through my councilling sessions and am a much happier person
Medical marijuanna
I'm still working on me one day at a time
Sharing with Facebook groups
Adaptive means to stay physically active
Taking Bachlofen
My parents are trying to find doctors and therapies that will help me.
Baclofen help alot with the tremors and shakes
Occupational therapy - found ways to perform difficult tasks.
Familiar with family history
Trabalho
giving up smoking
Physio therapy
less caffeine
Vegan diet - more energy