Story about Hereditary Spastic Paraplegia .

A Hereditary Spastic Paraplegia story

Dec 2, 2


I started showing minor symptoms (heavy footedness) in 2007/8. There wasnt any previous knowledge of health issues anywhere on either side of my family that we knew of. Talking with my older brother on the phone, he lives in Sydney, we realised we both had some similar problems and decided we would see seperate neurologists. My neurologist decided, after many tests, that I had HSP. My brothers neurologist decided his was cerebellar ataxia as we had a lot of things that weren't the same. We continued our lives as normal as we could but then, in 2010, I was knocked over by an industrial skip bin fracturing my lower spine. Since then my symptoms have increased rapidly, to the point that I use a walker outside and sometimes have to use a wheelchair. My brother seems to still be showing minor symptoms, and long may that continue.

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