Stories of Hidradenitis Suppurativa

Hidradenitis Suppurativa stories
                                                                Hello, my name is Tina M...
Hidradenitis Suppurativa stories
Loss is the softest word.   It’s tufts of hopeful grass on the hardest ground. It’s the sound of an eclipse slipping behind the clouds. It’s what we reach out to when we find our hands are as small as a two-year-old’s. ...
Hidradenitis Suppurativa stories
I've had HS since I was 20, and am now 40.  I also had the pilonidal cyst which is very closely related.  I've been to many dermatologists and GPs without any success. Tried many treatments...  I do finally have it under control at t...
Hidradenitis Suppurativa stories
It can take forever and a whole lot of stubbornness to get a diagnosis. If you know something is wrong keep pursuing the answers, Dr's have become lazy in their diagnostic skills. Keep looking!
Hidradenitis Suppurativa stories
It started in 2003 when I got a pilonidal cyst that had to be surgically removed. For the years after, I would deal with flares starting from my thighs and the back of my neck and eventually around the armpits, breasts and leg creases. I was too scar...

Tell your story and help others

Tell my story

View more

Hidradenitis Suppurativa forum

Question 297
I have a lifetime experience with this disease.  There seems to be emerging evidence that dairy and nightshade vegetables create the conditions for HS proliferation.    I can demonstrate potato's cause an inflamation two hours later...
Question 115
I might be reseaving ribuximab or  immune suppressants for a autoimmune  condition but  can't find out if it would make the HS worse, and I don't see the dermo till 2 weeks after the other doctor who'll decide what treatment to put me ...

Ask a question and get answers from other users.

Ask a question

View more

Statistics of Hidradenitis Suppurativa

22 people with Hidradenitis Suppurativa have taken the SF36 survey. Mean of Hidradenitis Suppurativa is 1311 points (36 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Hidradenitis Suppurativa

Join the map