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Which advice would you give to someone who has just been diagnosed with Hidradenitis Suppurativa?

See some advice from people with experience in Hidradenitis Suppurativa to people who have just been diagnosed with Hidradenitis Suppurativa

Hidradenitis Suppurativa advice

Hidradenitis Suppurativa (HS) is a chronic skin condition characterized by painful, recurrent abscesses and nodules in areas of the body with apocrine sweat glands, such as the armpits, groin, and buttocks. If you have recently been diagnosed with HS, it is important to remember that you are not alone. This condition affects millions of people worldwide, and while there is no cure, there are various strategies and treatments that can help manage the symptoms and improve your quality of life.



1. Educate Yourself


Understanding HS is crucial in managing the condition effectively. Take the time to learn about the causes, triggers, and available treatment options. Knowledge empowers you to make informed decisions and actively participate in your own care. Reliable sources such as medical websites, support groups, and reputable publications can provide valuable information.



2. Seek Professional Help


Consulting a dermatologist or a healthcare professional experienced in treating HS is essential. They can accurately diagnose the condition, assess its severity, and develop a personalized treatment plan tailored to your needs. Regular follow-ups with your healthcare provider will help monitor your progress and make any necessary adjustments to your treatment regimen.



3. Adopt a Skincare Routine


Developing a consistent skincare routine can help manage HS symptoms and prevent flare-ups. Gentle cleansing of the affected areas with mild, fragrance-free cleansers is recommended. Avoid harsh soaps or scrubbing vigorously, as they can further irritate the skin. After cleansing, apply a warm compress to help reduce inflammation and promote drainage of any existing abscesses.



4. Practice Good Hygiene


Keeping the affected areas clean and dry is crucial in managing HS. Shower regularly using lukewarm water and pat the skin dry gently. Avoid tight-fitting clothing that can cause friction and irritation. Wearing breathable fabrics such as cotton can help reduce sweat and moisture buildup, which can exacerbate symptoms.



5. Manage Triggers


Identifying and managing triggers that worsen your HS symptoms is important. While triggers can vary from person to person, some common ones include tobacco use, obesity, stress, hormonal changes, and certain foods. Keeping a journal to track your symptoms and potential triggers can help you identify patterns and make necessary lifestyle modifications.



6. Explore Treatment Options


There are several treatment options available for HS, ranging from topical medications to surgical interventions. Your healthcare provider may recommend antibiotics to control infection, anti-inflammatory medications to reduce inflammation and pain, or biologics to target specific components of the immune system. In severe cases, surgical procedures such as drainage of abscesses, laser therapy, or excision of affected areas may be considered.



7. Seek Emotional Support


Living with HS can be emotionally challenging. It is important to seek emotional support from friends, family, or support groups who understand what you are going through. Connecting with others who have HS can provide a sense of community and valuable insights. Additionally, consider speaking with a mental health professional who can help you navigate the emotional impact of the condition.



8. Prioritize Self-Care


Managing HS requires self-care and self-compassion. Prioritize activities that promote your overall well-being, such as regular exercise, stress management techniques (e.g., meditation, yoga), and hobbies that bring you joy. Taking care of your mental and physical health can positively impact your HS symptoms and overall quality of life.



9. Stay Positive and Patient


Living with a chronic condition like HS can be challenging, but maintaining a positive mindset and being patient with yourself is crucial. Remember that managing HS is a journey, and it may take time to find the right combination of treatments and lifestyle adjustments that work for you. Celebrate small victories along the way and seek support when needed.



While HS can be a difficult condition to manage, with the right approach and support, you can lead a fulfilling life. Remember to consult your healthcare provider for personalized advice and guidance throughout your HS journey.


Diseasemaps
5 answers
Don't give up hope. Many people are working hard to raise awareness so patients can get better treatment and better treatment options, as well as encouraging the medical industry to research HS and find an absolute cure. Build yourself a support network: trusted friends and family who accept and understand what you are going through. Join some Facebook HS support groups. You will find moral support, information, and suggestions that will help you along the way. Research HS and learn as much about it as you can. You may find you know more about it than the doctors you visit. Do NOT be ashamed or embarrassed. The human body is susceptible to all kinds of maladies, for which we are not at fault. It is NOT your fault you are sick. If you need help, ask for it. You will be okay. Just don't give up hope.

Posted Aug 21, 2017 by Penny 2150
Translated from spanish Improve translation
to evaluate your condition and current determihne if it is posile to undergo surgery, or treatment of drugs

Posted Aug 12, 2017 by NAT 1910
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Accepted! Will be your companion for the rest of your life. Do not fail your family and your friends!

Posted Aug 12, 2017 by Ana 1000
Translated from portuguese Improve translation
Listen to what the body has to say, because he gives us signs of how we can help combat the frequency of crises. And be patient because better days than others.

Posted Oct 1, 2017 by Sonia 1000

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HIDRADENITIS SUPPURATIVA STORIES
Hidradenitis Suppurativa stories
It started in 2003 when I got a pilonidal cyst that had to be surgically removed. For the years after, I would deal with flares starting from my thighs and the back of my neck and eventually around the armpits, breasts and leg creases. I was too scar...
Hidradenitis Suppurativa stories
I've had HS since I was 20, and am now 40.  I also had the pilonidal cyst which is very closely related.  I've been to many dermatologists and GPs without any success. Tried many treatments...  I do finally have it under control at this point. �...
Hidradenitis Suppurativa stories
Had recurring boils during late teens/early twenties. Doctors told me it was clogged hair follicles. Had one doctor lance one and not very gently.  I had first surgery in 2008 on a pilonidal cyst. That doctor didn't mention HS, but he left a hole i...
Hidradenitis Suppurativa stories
It can take forever and a whole lot of stubbornness to get a diagnosis. If you know something is wrong keep pursuing the answers, Dr's have become lazy in their diagnostic skills. Keep looking!
Hidradenitis Suppurativa stories
My story began at the age of 13. I had developed pneumonia. Shortly after getting treatment, I started to develop bumps on my inner thighs as well as my labia and vaginal lips. They were almost like pimples, but larger. They would hurt and pop on the...

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Hidradenitis Suppurativa forum

HIDRADENITIS SUPPURATIVA FORUM
Hidradenitis Suppurativa forum
I have a lifetime experience with this disease.  There seems to be emerging evidence that dairy and nightshade vegetables create the conditions for HS proliferation.    I can demonstrate potato's cause an inflamation two hours later...
Hidradenitis Suppurativa forum
I might be reseaving ribuximab or  immune suppressants for a autoimmune  condition but  can't find out if it would make the HS worse, and I don't see the dermo till 2 weeks after the other doctor who'll decide what treatment to put me ...

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