There are 476 people in the Hirschsprung Disease map

Do I have Hirschsprung Disease?

How do I know if I have Hirschsprung Disease?

1 answer
Hirschsprung Disease life expectancy

What is the life expectancy of someone with Hirschsprung Disease?

1 answer
Hirschsprung Disease symptoms

Which are the worst symptoms of Hirschsprung Disease?

1 answer
Latest progress of Hirschsprung Disease

What are the latest advances in Hirschsprung Disease?

1 answer

Stories of Hirschsprung Disease

STORY
Hirschsprung Disease stories
Tuve un embarazo normal y saludable, al igual que el nacimiento de mi hijo, pero a las dos semanas de nacido y después de expulsar todo el meconio empezó con constipación. Dejó de evacuar diario, aunque comia, dormia y su ...
Hirschsprung Disease stories
I was diagnosed with HD at a day and half old. I had a colostomy bag for a year and half and then had the pull thru done. I was diagnosed with TCHD (Total Colon Hirschsprungs Disease). I had my ups and downs throughout the years with multiple surger...
Hirschsprung Disease stories
I am the mom to a 3yr old 28 weeker. My son, Gabriel, was expected to have Hirschprung's since the beginning, but wasn't diagnosed till 11months theough biopsy. He had has pull through a week later. He only had to have 7cm taken. We are gaving a bit ...
Hirschsprung Disease stories
Diagnosed at 1 week old.  First pullthrough at 1 month old.  18 inches was removed from his intestines. Pooped on his own after the operation.  Stopped pooping at 2 months and 2 weeks old.  Found out he was lactose intolerant, too...
Hirschsprung Disease stories
In July of 2009 we found out our son had Hirschsprung's disease.  He had it all his life but was misdiagnosed.  We thank god for Dr Harmond.  He found it and started treating Tony.  We had a up hill battle though.  We had a p...

Tell your story and help others

Tell my story

View more

Hirschsprung Disease forum

QUESTION

Ask a question and get answers from other users.

Ask a question

View more

Statistics of Hirschsprung Disease

10 people with Hirschsprung Disease have taken the SF36 survey. Mean of Hirschsprung Disease is 2321 points (64 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Share

Hirschsprung Disease