Probiotics and fiber supplements for his Hirschsprungs. Omega 3 supplements and avoiding dairy and dairy-based products in his diet for his ADHD.
Pull through at 8 days old
Knowing that I know this diease (inside out and better than most doctors)
Feeding tube
Getting almost on my large intestine removed And Colostomy it was the best thing that ever happened
Mommy fight for wat is best for me
Training help and making sure appliances are changed the way I do it - or they are fired!
Always ask for the truth....there is no cure for this desease....there is no quick fix!
Ace procedure at 7years old
Corrective surgery
my son has overcome the worse, and there is a light at the end of the tunnel
My toys
La possibilité d'allonger son congé parental
Hospital grade rash cream
Fibrous food
My family being my strength.
Mommy is always by my side
High fiber diet with adequate fluid
Magnesium is safer than Miralax
An amazing consultant
Having a supportive husband and family
Increased Stress=increased symptoms
Alinia
I have been healthy for 4 years now with no hospital admissions.
Plenty of water
I have been healthy for 4 years now with no hospital admissions.
I have been healthy for 4 years now with no hospital admissions.
The love of family
The love of family
My mom not giving up and staying by my side And fighting the nurses and doctors to listen when I was dying
Hydration. Having his water bottles filled and with him all the time. Play activities that involve gross/fine motor movements daily.
Born 8/13/15
Carrying around a medical alert card that details exactly what to do in enterocolitis instance
Constant pain meds
My mom not giving up and staying by my side And fighting the nurses and doctors to listen when I was dying
Mommy treats me like a normal little girl
Diet for sure makes such a difference. I can cut back my son's meds when he gets enough of the types of fibre he needs. AND DRINK FLUIDS ALL DAY!
Every case is so different, ask for advise but never neglect your own instinct.
Lots of fiber in my diet !!
seeing more Hirschsprungs awareness
Love and support
My 10month son also born with HD, being strong for him.
High fiber diet
Family and friends support
Miralax causes problems
Learning bowel washouts myself
Being able to have a break occasionally