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Can people with Hirschsprung Disease work? What kind of work can they perform?

See how people with experience in Hirschsprung Disease give their opinion about whether people with Hirschsprung Disease can work and what kind of jobs are more appropriated for people with Hirschsprung Disease

Hirschsprung Disease jobs

Can people with Hirschsprung Disease work?


Hirschsprung Disease is a condition that affects the large intestine (colon) and causes problems with bowel movements. It occurs when certain nerve cells, called ganglion cells, are missing from parts of the colon. This absence of ganglion cells leads to a lack of muscle movement in those areas, resulting in difficulties passing stool.


While Hirschsprung Disease can have a significant impact on a person's quality of life, it does not necessarily prevent individuals from being able to work. The ability to work with this condition largely depends on the severity of the symptoms, the individual's overall health, and the specific job requirements.


What kind of work can they perform?


The type of work that individuals with Hirschsprung Disease can perform varies based on their individual circumstances. Some people with mild cases of the condition may experience minimal symptoms and can engage in a wide range of occupations without significant limitations. On the other hand, those with more severe symptoms may require certain accommodations or adjustments in their work environment.


It is important for individuals with Hirschsprung Disease to consider their own physical and emotional well-being when choosing a career path. Jobs that involve prolonged periods of sitting or require frequent access to restroom facilities may be more suitable for individuals with this condition. Additionally, jobs that offer flexibility in terms of breaks or working hours can be beneficial for managing symptoms and seeking medical care when needed.


Workplace accommodations for individuals with Hirschsprung Disease


Employers are legally obligated to provide reasonable accommodations to individuals with disabilities, including those with Hirschsprung Disease. Some potential workplace accommodations that can help individuals with this condition include:



  • Access to clean and easily accessible restroom facilities

  • Flexible work hours or the ability to take breaks when needed

  • Permission to work from home or have a remote work arrangement

  • Adjustments to seating arrangements or ergonomic equipment to support comfort

  • Understanding and supportive colleagues and supervisors who are aware of the condition and its potential impact


It is important for individuals with Hirschsprung Disease to communicate their needs and any necessary accommodations to their employers. This can help create a supportive work environment that allows them to perform their job effectively while managing their condition.


Conclusion


People with Hirschsprung Disease can certainly work, although the type of work they can perform may vary depending on the severity of their symptoms and individual circumstances. With appropriate accommodations and support from employers, individuals with Hirschsprung Disease can pursue a wide range of careers and contribute to the workforce.


Diseasemaps
6 answers
Raising awareness, the more awareness the more people know, the more the governments around the world will help fund more research.
Also help raise awareness for the families that don't realise there are other families out there going through Hirschsprung's.

Posted Sep 28, 2017 by Stefania 2070
Depends how severe the symptoms are. If pull through surgery is successful, the options are unlimited. Adults with colostomy bags can do most jobs.

Posted Oct 25, 2018 by Mallory 1500
They can work, but it is different from person to person. My experience is because of my numerous surgeries, I cannot lift or carry a lot or heavy things. Also, flexibility to be able to use the bathroom as needed would be helpful as our systems don’t work on a normal schedule, if you will.

Posted May 15, 2019 by RachelPM 2500
Yes they can. And whatever they perfer

Posted May 15, 2019 by Samie 1500
Yes. They can work as a normal person

Posted Feb 5, 2021 by Dawud Mohamed Idham 3550

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I was diagnosed with HD at a day and half old. I had a colostomy bag for a year and half and then had the pull thru done. I was diagnosed with TCHD (Total Colon Hirschsprungs Disease). I had my ups and downs throughout the years with multiple surger...
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In July of 2009 we found out our son had Hirschsprung's disease.  He had it all his life but was misdiagnosed.  We thank god for Dr Harmond.  He found it and started treating Tony.  We had a up hill battle though.  We had a pull thru done, but w...
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Tuve un embarazo normal y saludable, al igual que el nacimiento de mi hijo, pero a las dos semanas de nacido y después de expulsar todo el meconio empezó con constipación. Dejó de evacuar diario, aunque comia, dormia y su comportamiento era norma...
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Diagnosed at 1 week old.  First pullthrough at 1 month old.  18 inches was removed from his intestines. Pooped on his own after the operation.  Stopped pooping at 2 months and 2 weeks old.  Found out he was lactose intolerant, too. Nutramigen was...
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I am the mom to a 3yr old 28 weeker. My son, Gabriel, was expected to have Hirschprung's since the beginning, but wasn't diagnosed till 11months theough biopsy. He had has pull through a week later. He only had to have 7cm taken. We are gaving a bit ...

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