Question - Hereditary Neuropathy With Liability To Pressure Palsies HNPP
Attempting to compile numbers of HNPP sufferers from across the world!
Hi all,
Apologies, I'm currently compiling numbers of people with HNPP to create an interactive map so we can see how many people have the condition across the world.
It will be continually updated and this question will be asked periodically so that the numbers are correct.
If you can please tell me where you are located countrywise, I can log the numbers. No names will be recorded. (I tried creating a poll, but there were too many countries and not enough options!)
So far there have been 150 responses and you can see how the map is looking.
And just for transparency - here's the document where it's being logged: HNPP POLL DOCUMENT
And if you haven't seen the website yet, here is the address: HNPP Well-being
It's dedicated to people with HNPP and how to cope on a daily basis. I'm currently interviewing people across the globe - I'm a journalist by profession when I'm not fatigued!
London, United kingdom
Sligo, ireland
Manchester uk
Ontario Canada
Thanks guys please feel free to keep them coming - all been logged so far! If I've +1 your response - it means you've been recorded. Will keep updating whenever I get new numbers.
Me - Plymouth UK
Sister - Geneva Switzerland
Father - Lincolnshire, UK
Aunt - Lincolnshire, UK
We are all diagnosed by genetic test.
myself knutsford cheshire
my two sons knutsford cheshire
my sister knutsford cheshire
her two children knutsford cheshire
TOTAL =6 in knutsford cheshire (UK)
Me - Florence Italy
My daughter - Florence Italy
My mother - Florence Italy
Myself - undiagnosed sufferer
My son from first marriage - diagnosed by genetic testing
Daughter from second marriage - diagnosed by genetic testing
Lynette -
all from Melbourne Australia
I think we may already be logged
Hi Lynette! I hope you are well - just to check, you say you may already be logged - are you on any of the Facebook groups? Or your family members? Just in case I don't mark them twice :) I look forward to your response. Kind regards, Suswati
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