Stories of Homocystinuria

STORY
Homocystinuria stories
he is now 20. He has had lens replacement in both eyes and jaw surgery in last year. He is b6 responsive. 
Homocystinuria stories
Born 1947 with Cystinuria 1st Kidney stone at 15 years 2nd Kidney stone and surgery at  19 years Had taken Citralka (sp?) liquid 3 more surgeries at age 20-21 years Went on Penicillamine/ Cuprimine & bicarb of soda pills Cut prote...

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Homocystinuria forum

QUESTION
Question 251
Does anyone else use Penicillamine/ Cuprimine  with bicarb of soda pills.  I take two Cuprimine one night and two soda pills the next night.  They cannot be combined with each other.  I get up in the night because of drinking...

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Statistics of Homocystinuria

0 people with Homocystinuria have taken the SF36 survey. Mean of Homocystinuria is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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