There are 39 people in the Hyperekplexia map

Hyperekplexia causes

Which are the causes of Hyperekplexia?

1 answer
Prevalence of Hyperekplexia

What is the prevalence of Hyperekplexia?

Hyperekplexia advice

Which advice would you give to someone who has just been diagnosed wit...

1 answer
Hyperekplexia diet

Is there a diet which improves the quality of life of people with Hyp...

1 answer

Stories of Hyperekplexia

STORY
Hyperekplexia stories
My son, born April 2016, was diagnosed with Hyperekplexia five days after birth. He has it rather severely, with reoccurring apnoeas. Please feel free to contact me, especially if you are a new parent or have the GLRB mutation. 
Hyperekplexia stories
Hi, My daughter is 3yrs old. When she was born she had her first "episode". her episodes consist of her startling, going stiff, shaking. she used to have up to 60/70 a day. she has a very disturbed sleep and is a very anxious little girl. her doctors...
Hyperekplexia stories
 My name is Jared, when I was younger a lot of my falls were chalked up to me being an accident prone kid, after many years of wrongful diagnosis of psychological issues it was finally determined that my condition was indeed neurological, and th...
Hyperekplexia stories
i developed what the Drs thought was epilepsy at 22 years of age. My symptoms have changed over the years to the stage where a fright makes me seize and fall, aslso don't even need noise these episodes just happen, I can have 1 a day to 10 or more a ...
Hyperekplexia stories
Born in 1944,Very stiff when awake and always jumpy when startled,fell a lot during child hood and did not protecked myself with hands,went all through school years still a bit stiff,but nobody understood in those days and we just got on with life.al...

Tell your story and help others

Tell my story

View more

Hyperekplexia forum

QUESTION

Ask a question and get answers from other users.

Ask a question

View more

Statistics of Hyperekplexia

5 people with Hyperekplexia have taken the SF36 survey. Mean of Hyperekplexia is 1685 points (47 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Share

Hyperekplexia