Hi, My daughter is 3yrs old. When she was born she had her first "episode". her episodes consist of her startling, going stiff, shaking. she used to have up to 60/70 a day. she has a very disturbed sleep and is a very anxious little girl. her doctors put it down to epilepsy even though none of her tests suggested she had it. she was put on many medicines which really didnt help. just two months ago the doctors diagnosed her with hyperekplexia and put her on clonazepam. this medicine has helped her episodes calm down and has made her less anxious.
if you have any questions or want to talk just contact me.