A Hyperekplexia story

May 21, 2017

 My name is Jared, when I was younger a lot of my falls were chalked up to me being an accident prone kid, after many years of wrongful diagnosis of psychological issues it was finally determined that my condition was indeed neurological, and the diagnosis was HXP.

I did not experience startle falls, or the terrible stiffness until much later (end of my pubescence). But I guess even within a disease we all differ. 

The anxiety that this brings is terrible and makes it a very lonely disease, the post trauma and the worry of falls even while medicated are still rough sometimes. But we have to keep our chin up.


I am Hyperekplexia, I am Canadian, I am Newfoundland.

But most of all, I am Jared

Know someone who should read this story? Share it


Login or register to leave a comment

ICD9 and ICD10 codes of Hyperekplexia

ICD10 code of Hyperekplexia and ICD9 code

Hyperekplexia advice

Which advice would you give to someone who has just been diagnosed wit...

Hyperekplexia life expectancy

What is the life expectancy of someone with Hyperekplexia?

Hyperekplexia and depression

Hyperekplexia and depression

Is Hyperekplexia contagious?

Is Hyperekplexia contagious?

Prevalence of Hyperekplexia

What is the prevalence of Hyperekplexia?

Hyperekplexia prognosis

Hyperekplexia prognosis

Hyperekplexia jobs

Can people with Hyperekplexia work? What kind of work can they perform...