Help us to help more people
| View more
Join the map
Do the survey
Advice of Idiopathic Hypersomnia
Having a definitive diagnosis. It meant that it wasn’t psychosomatic which is what I had been told by family, friends and GPs for years
Provigil (modafinil) for treating neurological fatigue and drowsiness
Supportive husband, family, cats...and a few friends who still love me if I'm infrequently in touch
Provigil - the only thing that's given me a chance at a half decent life
Adderall has helped with energy
Waking up with the sun and no alarm is awesome
by Jen Green
Finding the right doctor
I'm a mom of 2 boys, 12 years old and 17 years old.
Learning my "new normal" life
My Faith in Christ
Modafinil helps through the day.
Finding a doctor who gave me antibiotics until I felt better from lyme disease that caused my hypersomnia.
Getting a diagnosis
Metformin has helped reduce my weight and appetite significantly since starting a year ago.
Being on dexamphetamine
Dexamphetamine and Armodafinil work best for me
by Mark Ellsworth
Red Bull. Gave up on medications and stuck with what helps very marginally with feeling more alert.
Duromine did help me feel better but unfortunately it’s too expensive.
by Sharon Lee
Proper diagnosis and treatment
Max Dose Dexamphetamine and Modafinal enable me to function but i still have no quality of life
Dexamphetamine helps keep me awake enough to work
Adderall XR 30mg twice a day
Finding a group on Facebook-I wasn’t the only one going through the everyday battles
No medicines have made much impact, but getting diagnoses help to calm the perplexed mind.
A deep and rich inner spiritual life
My life in Orkney
Continually checking on all health aspects makes a difference - side effects from 1 medicine can cause the need for additional medicines
Adderall has helped me function
by Jen Green
Having the right support team
Me, my boys, and husband play hockey.
Finding the right medication (Concerta)
The psychiatrist who gave me ProVigil. It gave me back my life.