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Which are the symptoms of Idiopathic Hypersomnia?

See the worst symptoms of affected by Idiopathic Hypersomnia here

Idiopathic Hypersomnia symptoms

Symptoms of Idiopathic Hypersomnia


Idiopathic Hypersomnia (IH) is a neurological disorder characterized by excessive daytime sleepiness (EDS) that is not alleviated by a sufficient amount of sleep at night. Unlike other sleep disorders, individuals with IH may sleep for extended periods but still wake up feeling unrefreshed and excessively sleepy throughout the day. The exact cause of IH is unknown, hence the term "idiopathic," but it is believed to be related to a dysfunction in the brain's sleep-wake cycle.



1. Excessive Daytime Sleepiness (EDS): The hallmark symptom of IH is an overwhelming and persistent feeling of sleepiness during the day, regardless of the amount of sleep obtained. This excessive sleepiness can significantly impact daily functioning, making it difficult to stay awake and alert, leading to impaired cognitive abilities and reduced productivity.



2. Prolonged Sleep: Individuals with IH often experience prolonged nighttime sleep, typically lasting more than 10 hours. Despite the extended sleep duration, they still wake up feeling excessively sleepy and struggle to maintain wakefulness throughout the day.



3. Difficulty Awakening: People with IH often find it challenging to wake up in the morning, even after a full night's sleep. They may experience a sense of grogginess and struggle to fully transition from sleep to wakefulness, further contributing to their excessive daytime sleepiness.



4. Non-Refreshing Sleep: Despite sleeping for extended periods, individuals with IH do not feel refreshed upon waking. They may still feel tired, groggy, and lacking energy, which persists throughout the day.



5. Cognitive Impairment: IH can significantly impact cognitive function, leading to difficulties with concentration, memory, and overall mental clarity. Tasks that require sustained attention and focus may become challenging, affecting work, academic performance, and daily activities.



6. Automatic Behavior: Some individuals with IH may experience episodes of automatic behavior, where they perform routine tasks without conscious awareness or memory. This can be concerning and potentially dangerous, especially if it occurs during activities such as driving or operating machinery.



7. Hypnagogic Hallucinations: In some cases, individuals with IH may experience vivid and dream-like hallucinations when falling asleep or waking up. These hallucinations can be visual, auditory, or sensory in nature and may contribute to disrupted sleep patterns.



8. Sleep Inertia: Sleep inertia refers to a state of grogginess and impaired cognitive function immediately upon awakening. Individuals with IH often experience prolonged sleep inertia, making it challenging to fully wake up and engage in daily activities.



9. Increased Sleep Need: People with IH have an increased need for sleep compared to the general population. Despite sleeping longer hours, they still experience excessive daytime sleepiness, indicating a disruption in the quality of sleep.



10. Emotional Disturbances: IH can also impact emotional well-being, leading to mood disturbances such as irritability, depression, and anxiety. The constant struggle with excessive sleepiness and its impact on daily life can contribute to emotional distress.



It is important to note that the symptoms of IH can vary in severity and may overlap with other sleep disorders or medical conditions. If you suspect you or someone you know may have IH, it is crucial to consult a healthcare professional for a proper diagnosis and appropriate management.


Diseasemaps
12 answers
My first choice would be getting rid of the constant sleepiness

Posted May 17, 2017 by Emma 100
Excessive sleepiness, inability to function daily and maintain a normal productive life, cannot stay awake or get out of bed easily

Posted Jun 6, 2017 by Candice 2150
With idiopathic hypersomnia you spend most of your day feeling immensely tired or sleeping. You can never feel better without the use of stimulants on a consistent, daily basis. Life becomes harder and you have to rely on your support system (consanguineous clan or close friends) for help.

Posted Jun 7, 2017 by Sarah 2050
In my opinion, the worst symptoms, is how exhausted you feel regardless of how much sleep you have. You could sleep for 8 or 10 hours, yet feel just as exhausted before you went to sleep. Also not being able to do things with friends because you need to go home to sleep.

Posted Jun 11, 2017 by Sleepykatie 250
Excessive daytime sleepiness, sleep inertia, brain fog/difficulties with concentration and general cognition, unrefreshing sleep

Posted Jun 11, 2017 by Maddy 600
Feeling sleepy all the time. This leads to cancelled plans and a constant worry about getting through the day.

Posted Oct 1, 2017 by Sarah 400
Symptoms and treatment. Yes they help, to a point. When I feel like I need to stop working, but doctors want to keep trying. Continually dropping things and so tired, but doctors say can work. Although getting SSDI sounds overwhelming and difficult too.

Posted Oct 4, 2017 by Rita 200
Excessive daytime sleepiness
Sleep inertia (difficulty waking)
Sleep drunkenness
Brain fog
possible: long sleep (sleeping for longer than average)

Posted Jan 7, 2018 by em23jjh 200
The extreme fatigue which is not alleviated by any amount of sleep is the major symptom of this disorder. This is the barrier that prevents anyone with IH from having a normal life. To eradicate this symptom would enable the ‘sufferer’ to lead as close to a normal life as possible.
I think the next problem is the lack of knowledge about the disease and this causes those with IH to be met with ignorance, disbelief and a lack of empathy about the illness and it’s debilitating consequences.

Posted Jan 10, 2018 by Donnbot 610
Inability to wake up naturally. Pain. Memory. Sleep paralysis. Forgetting people have died . Memory loss. Foggy head . Eye sight. Mobility. Socialising. Working. Self worth. The voice in our heads . The anxiety. The confusion

Posted Oct 16, 2018 by Kathy 1600
Sleep deprivation is the best way to word it. I sleep but my brain doesn’t do what it should to make me restful. I would get rid of the extreme need for more sleep, no matter how much sleep you get.

Posted Jun 27, 2019 by Susan 150

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World map of Idiopathic Hypersomnia

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Stories of Idiopathic Hypersomnia

IDIOPATHIC HYPERSOMNIA STORIES
Idiopathic Hypersomnia stories
IH is hard  to explain to anyone and nobody believes you anyways. I was always tired and they ran every single test I could think of and finally one day a doctor suggested I get a sleep study done.  The sleep study showed nothing so they set me up ...
Idiopathic Hypersomnia stories
I ha e been dealing with IH for 10 years before being diagnosed. Started when I was 19 and having a hard time staying away while driving and only got worse as time went on. Many many test and many army doctor not listening or just putting it up to an...
Idiopathic Hypersomnia stories
J'ai etait diagnostiquer HI il y a 1 ans. 
Idiopathic Hypersomnia stories
Idiopathic Hypersomnia stories

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Idiopathic Hypersomnia forum
https://sleepandbleep.weebly.com/   Visit my new website and help me build a supportive community. My goal is to provide a one-stop-shop for those with IH to seek advice from others going through similar circumstances, promote self-advocac...

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