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Living with IgA nephropathy. How to live with IgA nephropathy?

Can you be happy living with IgA nephropathy? What do you have to do to be happy with IgA nephropathy? Living with IgA nephropathy can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with IgA nephropathy

Living with IgA nephropathy

Living with IgA Nephropathy


IgA nephropathy, also known as Berger's disease, is a kidney disorder characterized by the accumulation of the protein immunoglobulin A (IgA) in the kidneys. This condition can lead to inflammation and damage to the kidneys over time. While there is no cure for IgA nephropathy, there are several strategies and lifestyle changes that can help individuals manage the condition and maintain their overall well-being.



1. Regular Medical Care


It is crucial for individuals with IgA nephropathy to establish a strong relationship with a nephrologist, a doctor who specializes in kidney diseases. Regular check-ups and monitoring of kidney function are essential to detect any changes or progression of the disease. Your doctor may recommend specific medications or treatments to manage symptoms and slow down the progression of IgA nephropathy.



2. Follow a Healthy Diet


Diet plays a significant role in managing IgA nephropathy. It is important to work with a registered dietitian who can create a personalized meal plan based on your specific needs. Generally, a kidney-friendly diet for IgA nephropathy includes:



  • Limiting sodium intake to reduce fluid retention and blood pressure.

  • Controlling protein consumption to lessen the workload on the kidneys.

  • Avoiding foods high in potassium and phosphorus to prevent electrolyte imbalances.

  • Drinking an adequate amount of water to stay hydrated.



3. Manage Blood Pressure


High blood pressure can worsen kidney damage in IgA nephropathy. It is crucial to monitor and control your blood pressure through lifestyle modifications and medications prescribed by your doctor. Regular exercise, maintaining a healthy weight, reducing sodium intake, and limiting alcohol consumption can help manage blood pressure levels.



4. Stay Active


Engaging in regular physical activity is beneficial for overall health and can help manage IgA nephropathy. However, it is important to consult with your doctor before starting any exercise regimen. Low-impact activities such as walking, swimming, or cycling are generally safe options. Exercise can help maintain a healthy weight, improve cardiovascular health, and reduce stress.



5. Quit Smoking and Limit Alcohol


Smoking and excessive alcohol consumption can further damage the kidneys and worsen IgA nephropathy. Quitting smoking and limiting alcohol intake are essential steps in managing the condition and preserving kidney function. If you need support to quit smoking or reduce alcohol consumption, consider seeking help from healthcare professionals or support groups.



6. Manage Stress


Stress can have a negative impact on overall health, including kidney function. Finding healthy ways to manage stress is important for individuals with IgA nephropathy. Consider incorporating relaxation techniques such as deep breathing exercises, meditation, yoga, or engaging in hobbies and activities that bring joy and relaxation.



7. Stay Hydrated


Proper hydration is essential for kidney health. Drinking an adequate amount of water helps flush out toxins and waste products from the body. However, it is important to consult with your doctor regarding the recommended daily fluid intake, as excessive fluid consumption may strain the kidneys.



8. Educate Yourself and Seek Support


Learning about IgA nephropathy and understanding its management can empower individuals to take control of their health. Stay informed about the latest research, treatment options, and lifestyle recommendations. Additionally, connecting with support groups or online communities can provide a valuable platform to share experiences, seek advice, and find emotional support from others living with IgA nephropathy.



Remember, every individual's experience with IgA nephropathy is unique. It is important to work closely with your healthcare team to develop a personalized management plan that suits your specific needs. By following these strategies and making positive lifestyle choices, you can improve your quality of life and effectively manage IgA nephropathy.


Diseasemaps
2 answers
You can live a completely normal life or you could develop more health issues like I have. But, once you realize that it all is out of your hands and this is your "new normal", which could be no different than before your diagnosis, it gets easier to handle. You kind of have to give up your control and let your body behave how it wants to sometimes.

Posted Mar 23, 2017 by Taylor 2795

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Stories of IgA nephropathy

IGA NEPHROPATHY STORIES
IgA nephropathy stories
This is a specialized kidney disease hospital in China founded in 1986. We treated different kinds of kidney disease including Iga by Traditional Chinese Medicine and has a satisfied effect.  Some Iga patients with kidney function damaged even impr...
IgA nephropathy stories
I have IGA, my kidney function is at 10%. I have a fistula in my arm and I'm going to start  dialysis soon.
IgA nephropathy stories
I have IGA and as a result I have TINU.    I have had this for almost  20 years.  I am at stage three moderate.  
IgA nephropathy stories
I was diagnosed in 2007 following a miscarriage. I was treated in 2008 after a decline in function.  I took pred cytoxan and bp meds. Due to a reaction from cytoxan i had liver failure in Aug of 2008. I was taken off cytoxan and revovered slowly fro...
IgA nephropathy stories
Diagnosed in April 2015 thru biopsy

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