Story about Inappropriate Sinus Tachycardia .

IST, the most inappropriate...

Mar 4, 2017


Years ago I was diagnosed with autonomic and peripheral neuropathy, my autonomic symptoms were extremely mild and only effected my eyes and stomach...nothing cardiac. 

November 2014 I was in a 3 car pile up, I was the marshmallow per se in the smore.6 herniated discs

March 2016 I had 16 corticosteroid nerve black injections as I was still in treatment and massive chronic pain. I had a seizure on the table, the Dr continued and never transported me. I had chest, palpations and trouble breathing from that night on. 

April 2016 I'm having problems still and my  husband ( has Tetralogy of Fallot - congenital heart defect) suggests I see a cardiologist in Florida since this is  not going away. 

Florida is pediatric or geriatric, the cardiologist had an idea of what it was with no name. Frankly, he shrugged it off as most do as anxiety but recommended Corlanor. Due to insurance I had to settle on a beta blocker.

June 2016 I'm worsening, I fly to see my husbands EP in New Jersey. He confirms IST, with a name. With his back up and official diagnosis I'm able to get Corlanor through the safety net foundation. 

December 2016 A happy followup with expectations of grandeur turned into an implantation of a loop recorder.

February 2017 I'm in a hospital in Florida with debilitating symptoms, I can barely function, I'm released the next day by their cardiologist. I fly up to NJ to see my EP.

My EP wants to do an EP study and TEE on me but needs to rule some things out neurologically before he can proceed. 

I land at the Mayo Clinic in Rochester, Minnesota after research and hospital after hospital having 3 month to 5 year waiting periods not understanding how fast I'm degrading. MAYO DOES. 

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1 comment
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I am experiencing same thing! At a lost right now. Medications are not working. What has Mayo done? 

Commented 6 years ago Caitlyn Cota 10

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