Stories of Interstitial Cystitis

STORY
Interstitial Cystitis stories
I have suffered from hormonal problems since I was 16 yrs old (1990) but got a PCOS diagnosis at almost 35 yrs old (2008). I also have problems with my thyroid and adrenal gland. I have suffered from chronic headaches since 2000 but started getting c...
Interstitial Cystitis stories
I was finally diagnosed with Ankylosing Spondylitis in January 2009 after what I can only describe as an uphill battle both physically and emotionally. I am a mother of 5 children and had my first child at just 16 yrs of age. I had my ...
Interstitial Cystitis stories
I have suffered with different forms of pelvic pain for over 36 years. I have interstitial cystitis, Vulvodynia & a few other pelvic problems. 
Interstitial Cystitis stories
When I was younger my mom would take me to the ER because of my stomach pain the doctors would always say it was in my head.  After I got married and had our son 2 months early I had dysplasia. After 2 years of problems we thought was from my em...
Interstitial Cystitis stories
In Sept of 1994 I woke up with a burning urethra and lower bladder pain. For the next several months I was on several antibiotics and had numerous tests done. In January of 1995 after a cystogram that showed Hunners Ulcers I finally had an answer. Be...

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Statistics of Interstitial Cystitis

57 people with Interstitial Cystitis have taken the SF36 survey. Mean of Interstitial Cystitis is 1079 points (30 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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