18

What is the prevalence of Interstitial Cystitis?

How many people does Interstitial Cystitis affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Interstitial Cystitis

Interstitial Cystitis (IC) is a chronic bladder condition characterized by recurring pain and frequent urination. It primarily affects women, but men can also develop it. The prevalence of IC varies across different studies, making it challenging to determine an exact figure. However, it is estimated that around 3 to 8 million people in the United States alone are affected by IC. The condition often goes undiagnosed or misdiagnosed due to its complex nature and similarity to other urinary disorders. Early recognition and proper management are crucial for improving the quality of life for individuals with IC.



Interstitial Cystitis (IC), also known as painful bladder syndrome, is a chronic condition characterized by bladder pain and urinary frequency. It affects both men and women, although it is more common in women.


The prevalence of IC varies depending on the population studied and the diagnostic criteria used. According to estimates, approximately 3 to 8 million people in the United States are affected by IC. However, it is important to note that many cases go undiagnosed or misdiagnosed due to the complexity of the condition and the similarity of symptoms to other urinary disorders.


IC can occur at any age, but it is most commonly diagnosed in individuals between 30 and 40 years old. It is a chronic condition that can significantly impact a person's quality of life, causing physical discomfort, emotional distress, and limitations in daily activities.


While the exact cause of IC is unknown, it is believed to involve a combination of factors, including bladder inflammation, dysfunction of the protective lining of the bladder, and abnormalities in the immune system. Treatment options for IC aim to alleviate symptoms and may include lifestyle modifications, medications, bladder instillations, and in some cases, surgery.


Diseasemaps
4 answers
It is considered a rare disease with only 700,000 cases in the US, but I think this is an incorrect number. I think that many more people have it but doctors are not testing them properly and they are just being given antibiotics and being told to go away. I would estimate that 1 in 20 women have a painful bladder issue and 1 in 50 men. It is supposed to affect women in their 40s, but I know 4 other women who all were diagnosed in their 20s. I had symptoms at 7. So, while the governmental agencies say that this is a condition that doesn't effect a lot of people, I think that it does but few people want to talk about their bladders.
However, it does affect women more than men and adults more often then children.

Posted Jun 10, 2018 by SaraLouise 2500
Translated from spanish Improve translation
18 between 100000 in women
10 out of 100000 in men

It is a relatively rare condition.

Posted Sep 2, 2017 by Ana 3358
Translated from spanish Improve translation
Tends to affect more women between 45-60 years .

Posted Nov 23, 2017 by LPilar 2500

Prevalence of Interstitial Cystitis

Interstitial Cystitis life expectancy

What is the life expectancy of someone with Interstitial Cystitis?

9 answers
Celebrities with Interstitial Cystitis

Celebrities with Interstitial Cystitis

3 answers
Is Interstitial Cystitis hereditary?

Is Interstitial Cystitis hereditary?

5 answers
Is Interstitial Cystitis contagious?

Is Interstitial Cystitis contagious?

6 answers
Natural treatment of Interstitial Cystitis

Is there any natural treatment for Interstitial Cystitis?

7 answers
ICD9 and ICD10 codes of Interstitial Cystitis

ICD10 code of Interstitial Cystitis and ICD9 code

5 answers
Living with Interstitial Cystitis

Living with Interstitial Cystitis. How to live with Interstitial Cystitis?

7 answers
Interstitial Cystitis diet

Interstitial Cystitis diet. Is there a diet which improves the quality of l...

7 answers

World map of Interstitial Cystitis

Find people with Interstitial Cystitis through the map. Connect with them and share experiences. Join the Interstitial Cystitis community.

Stories of Interstitial Cystitis

INTERSTITIAL CYSTITIS STORIES
Interstitial Cystitis stories
I have suffered from hormonal problems since I was 16 yrs old (1990) but got a PCOS diagnosis at almost 35 yrs old (2008). I also have problems with my thyroid and adrenal gland. I have suffered from chronic headaches since 2000 but started getting c...
Interstitial Cystitis stories
When I was younger my mom would take me to the ER because of my stomach pain the doctors would always say it was in my head.  After I got married and had our son 2 months early I had dysplasia. After 2 years of problems we thought was from my emerge...
Interstitial Cystitis stories
In Sept of 1994 I woke up with a burning urethra and lower bladder pain. For the next several months I was on several antibiotics and had numerous tests done. In January of 1995 after a cystogram that showed Hunners Ulcers I finally had an answer. Be...
Interstitial Cystitis stories
I have suffered with different forms of pelvic pain for over 36 years. I have interstitial cystitis, Vulvodynia & a few other pelvic problems. 
Interstitial Cystitis stories
Went to Emergency room thinking I had a UTI. When this became clear, they checked my uterus, and ran CT SCAN. Only found divuticulitus, thought it was in flamed, sent me home with antibiotics. Pain never went away, ended up with million dollar work o...

Tell your story and help others

Tell my story

Interstitial Cystitis forum

INTERSTITIAL CYSTITIS FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map