1

Which are the symptoms of Interstitial Cystitis?

See the worst symptoms of affected by Interstitial Cystitis here

Interstitial Cystitis symptoms

Symptoms of Interstitial Cystitis


Interstitial cystitis (IC), also known as painful bladder syndrome, is a chronic condition that affects the bladder and causes a range of uncomfortable symptoms. While the exact cause of IC is unknown, it is believed to involve a combination of factors, including inflammation of the bladder lining, nerve dysfunction, and an abnormal immune response. The symptoms of IC can vary from person to person, but they generally revolve around bladder pain and urinary urgency.



1. Bladder Pain


One of the hallmark symptoms of IC is bladder pain, which can range from mild discomfort to severe, debilitating pain. The pain may be constant or intermittent and is typically located in the lower abdomen, pelvis, or perineal area. It may worsen as the bladder fills and improve temporarily after urination. The intensity of the pain can vary from person to person and may be described as aching, burning, or pressure.



2. Urinary Urgency


People with IC often experience a strong and frequent urge to urinate, even when the bladder is not full. This sensation of urinary urgency can be distressing and may lead to frequent trips to the bathroom throughout the day and night. Some individuals may also experience nocturia, which is the need to wake up multiple times during the night to urinate.



3. Frequency of Urination


In addition to urinary urgency, IC can cause increased frequency of urination. This means needing to urinate more often than usual, with some individuals needing to go every 10-15 minutes. The frequent need to urinate can disrupt daily activities and sleep patterns, impacting the overall quality of life.



4. Painful Sexual Intercourse


For many individuals with IC, sexual intercourse can be painful or uncomfortable. The pressure on the bladder during sexual activity can exacerbate bladder pain and cause discomfort. This can lead to a decreased desire for sexual intimacy and strain on relationships.



5. Pelvic Pain


Along with bladder pain, IC can also cause pelvic pain that extends beyond the bladder area. The pain may radiate to the lower back, groin, or thighs. It can be constant or intermittent and may worsen with certain activities or prolonged sitting.



6. Pain Relief with Urination


Some individuals with IC experience temporary relief from bladder pain after urination. This phenomenon, known as "voiding-induced pain relief," is not fully understood but is believed to be related to the temporary relaxation of the bladder muscles during urination.



7. Blood in Urine


In some cases, IC can cause blood in the urine, a condition known as hematuria. The presence of blood may be visible to the naked eye or detected through microscopic examination. Hematuria can be a cause for concern and should be evaluated by a healthcare professional.



8. Emotional Impact


Living with IC can take a toll on a person's emotional well-being. The chronic pain, frequent urination, and disruption of daily activities can lead to feelings of frustration, anxiety, and depression. It is important for individuals with IC to seek emotional support and engage in self-care practices to manage the emotional impact of the condition.



If you suspect you may have interstitial cystitis or are experiencing any of the symptoms mentioned above, it is crucial to consult with a healthcare professional for an accurate diagnosis and appropriate treatment. While there is no cure for IC, various treatment options, including medications, bladder instillations, physical therapy, and lifestyle modifications, can help manage the symptoms and improve quality of life.


Diseasemaps
11 answers
Frequent Urination, bladder pain, Flares, urgency, burning, insomnia, chronic pain & discomfort, depression, etc., etc.

Posted Apr 12, 2017 by Jerri 400
The pain and burning in urethra. Feeling your bladder actually spasm. Stress makes flares worse, or begin, so try to lower stress. There may be times you have the be cathed in a bad flare.

Posted Oct 17, 2017 by ash 600
Firstly, everyone with IC is different and their severity is different. But, the most limiting would be frequency and urgency to go the bathroom. This limits your lifestyle because you feel the need to always be aware of where a bathroom is, especially during a flare. I would also say that pain is a huge issue because the pain of IC feels like a radiating pain from deep within that can often set off the intestines, back, thighs, genitals and therefore make many other conditions that one may already have worse. The frequency and urgency also limit your relationships because you don't want to be intimate due to the irritation.
I would get rid of the frequency because I have to go to the bathroom upwards of 30 times a day. This makes it hard to work and hard to sleep.

Posted Jun 10, 2018 by SaraLouise 2500
Pain where your bladder area and back
Unable to hold your bladder and even worse when in the cold
Blood in your urine
Thinking of being told you have a lot of UTI's

Posted Apr 11, 2021 by Shawna 1250
Translated from spanish Improve translation
Urination is painful and every 5 seconds
The burning and pain before and after urinating
The bladder is inflamed

Posted Jul 17, 2017 by Dany 2005
Translated from spanish Improve translation
Urinate every moment and have the urge to go to the bathroom all the time. Pain in the vulva, especially in the lip right

Posted Aug 28, 2017 by Veronica 100
Translated from spanish Improve translation
Urinary frequency
Urinary urgency
Pain under belly
Back pain
Decreased bladder capacity
Chronic pain
Fatigue

Posted Sep 2, 2017 by Ana 3358
Translated from portuguese Improve translation
Pain after urinating, urinary urgency, pelvic pain. In times of crisis, it is impossible to sleep, impossible to rest, the body does not rest and the back constant accompanied by pain are unbearable. A day, a week,
a month so, the person becomes physically weak, and each dua that passes with less will follow as well. Besides the pain it's physical, you have emotional pain. If you could get rid of some of the symptoms, sure the pain would be the first.

Posted Sep 30, 2017 by Taisa 400
Translated from spanish Improve translation
Urgency.
Bleeding when urinating, in my case the ulcers.
Chronic pain when you urinate.as if you pushed a sword on fire.
Punctures in the bladder.
I described it to the doctor as a cystitis, cramps and pain of menstruation all at once, so what I noticed myself.

Posted Nov 23, 2017 by LPilar 2500
Translated from spanish Improve translation
Nocturia, polyuria, dysuria, pain in lower abdomen. The most disabling is urinary urgency and the constant pain

Posted Nov 24, 2017 by Alejandra 400

Interstitial Cystitis symptoms

Interstitial Cystitis life expectancy

What is the life expectancy of someone with Interstitial Cystitis?

9 answers
Celebrities with Interstitial Cystitis

Celebrities with Interstitial Cystitis

3 answers
Is Interstitial Cystitis hereditary?

Is Interstitial Cystitis hereditary?

5 answers
Is Interstitial Cystitis contagious?

Is Interstitial Cystitis contagious?

6 answers
Natural treatment of Interstitial Cystitis

Is there any natural treatment for Interstitial Cystitis?

7 answers
ICD9 and ICD10 codes of Interstitial Cystitis

ICD10 code of Interstitial Cystitis and ICD9 code

5 answers
Living with Interstitial Cystitis

Living with Interstitial Cystitis. How to live with Interstitial Cystitis?

7 answers
Interstitial Cystitis diet

Interstitial Cystitis diet. Is there a diet which improves the quality of l...

7 answers

World map of Interstitial Cystitis

Find people with Interstitial Cystitis through the map. Connect with them and share experiences. Join the Interstitial Cystitis community.

Stories of Interstitial Cystitis

INTERSTITIAL CYSTITIS STORIES
Interstitial Cystitis stories
I have suffered from hormonal problems since I was 16 yrs old (1990) but got a PCOS diagnosis at almost 35 yrs old (2008). I also have problems with my thyroid and adrenal gland. I have suffered from chronic headaches since 2000 but started getting c...
Interstitial Cystitis stories
When I was younger my mom would take me to the ER because of my stomach pain the doctors would always say it was in my head.  After I got married and had our son 2 months early I had dysplasia. After 2 years of problems we thought was from my emerge...
Interstitial Cystitis stories
In Sept of 1994 I woke up with a burning urethra and lower bladder pain. For the next several months I was on several antibiotics and had numerous tests done. In January of 1995 after a cystogram that showed Hunners Ulcers I finally had an answer. Be...
Interstitial Cystitis stories
I have suffered with different forms of pelvic pain for over 36 years. I have interstitial cystitis, Vulvodynia & a few other pelvic problems. 
Interstitial Cystitis stories
Went to Emergency room thinking I had a UTI. When this became clear, they checked my uterus, and ran CT SCAN. Only found divuticulitus, thought it was in flamed, sent me home with antibiotics. Pain never went away, ended up with million dollar work o...

Tell your story and help others

Tell my story

Interstitial Cystitis forum

INTERSTITIAL CYSTITIS FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map