Stories of Intracranial Hypertension

Intracranial Hypertension stories
In July of 2005, I had what I thought was the mother of all Migraines, which I have suffered from since I was 4 years old. I actaully lost my visoin for 2 days! That triggered an Emergency Room visit, where they directed me to a Neurologist for furth...
Intracranial Hypertension stories
Hi, I'm Shellie! I am a former RN, Director of Nursing and Legal Nurse Consultant. In all my 25+ years of nursing, I have never heard of Intracranial hypertension until I was dignosed. Like you, I have to research this little known condition. I ...
Intracranial Hypertension stories
Hi I am Pam, I am from Wales in the UK.  Back in 1984 I gave birth to my first child, a 9lb6oz son called James.  After about 3 months I started to get headaches, I originally thought they were just due to tiredness and being a new mother, ...
Intracranial Hypertension stories
I start having haedache since I was 15 years old but I never pay any attention to it untill I was 25 I was living un kentucky And I when to México for vacations I gain 25 pounds so when I come back to kentucky my headache were worse And I star...
Intracranial Hypertension stories
myself and my eldest both have chiari and syringomyelia. i also have iih and hydrocephalus. my youngest son has polymicrogyria bilateral persyvian syndrome.

Tell your story and help others

Tell my story

View more

Intracranial Hypertension forum

Question 381
Just wanting to know others with IIH.  I had stent surgery in July 2016 to prevent blindness.  
Question 359
hi everyone. Is anyone here from Wales suffering with intercranial hypertension? 

Ask a question and get answers from other users.

Ask a question

View more

Statistics of Intracranial Hypertension

105 people with Intracranial Hypertension have taken the SF36 survey. Mean of Intracranial Hypertension is 1252 points (35 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Intracranial Hypertension

Join the map