Intracranial Hypertension is when there is pressure on the brain caused by a build up of CSF fluid. The build up of fluid causes major migraines/headaches, nausea and vomiting, vision loss and tinnitus just to name a few.

There are 2462 people in the Intracranial Hypertension map

Intracranial Hypertension life expectancy

What is the life expectancy of someone with Intracranial Hypertension?

19 answers
Celebrities with Intracranial Hypertension

Celebrities with Intracranial Hypertension

1 answer
Is Intracranial Hypertension contagious?

Is Intracranial Hypertension contagious?

13 answers
Is Intracranial Hypertension hereditary?

Is Intracranial Hypertension hereditary?

12 answers


Pseudotumor Cerebri (PTC)

Idiopathic Intracranial Hypertension (IIH)
Secondary Intracranial Hypertension (SIH)
Benign Intracranial Hypertension (BIH)
Pseudotumor Cerebri (PTC)


Digestive system
Digestive system
Nervous system
Nervous system


  • Migraines/headaches
  • Vision Loss
  • Nausea
  • Vomiting
  • Fatigue
  • Neck, shoulder or back pain
  • Double vision (diplopia)
  • Ringing in the ears that pulses in time with your heartbeat (pulsatile tinnitus)
  • Insomnia
  • Dizziness


  • Shunt surgery or stents
  • Diuretics
  • Lumbar punctures
  • Specialist who treat it

    Neurology Neurosurgery Ophthalmology
    ICD9 and ICD10 codes of Intracranial Hypertension

    ICD10 code of Intracranial Hypertension and ICD9 code

    9 answers
    Natural treatment of Intracranial Hypertension

    Is there any natural treatment for Intracranial Hypertension?

    12 answers
    Living with Intracranial Hypertension

    Living with Intracranial Hypertension. How to live with Intracranial H...

    21 answers
    Intracranial Hypertension diet

    Intracranial Hypertension diet. Is there a diet which improves the qua...

    28 answers

    Stories of Intracranial Hypertension

    Intracranial Hypertension stories
    In July of 2005, I had what I thought was the mother of all Migraines, which I have suffered from since I was 4 years old. I actaully lost my visoin for 2 days! That triggered an Emergency Room visit, where they directed me to a Neurologist for furth...
    Intracranial Hypertension stories
    I start having haedache since I was 15 years old but I never pay any attention to it untill I was 25 I was living un kentucky And I when to México for vacations I gain 25 pounds so when I come back to kentucky my headache were worse And I star...
    Intracranial Hypertension stories
    Hi, I'm Shellie! I am a former RN, Director of Nursing and Legal Nurse Consultant. In all my 25+ years of nursing, I have never heard of Intracranial hypertension until I was dignosed. Like you, I have to research this little known condition. I ...
    Intracranial Hypertension stories
    Hi I am Pam, I am from Wales in the UK.  Back in 1984 I gave birth to my first child, a 9lb6oz son called James.  After about 3 months I started to get headaches, I originally thought they were just due to tiredness and being a new mother, ...
    Intracranial Hypertension stories
    Diagnosed at 12 at an AVERAGE weight, was not overweight. Allergic to diamox, topamax. Also diagnosed with migraines Now doctors arent even sure I have IIH It was due to an injury (we're assuming from trauma at young age) 3 spinal taps, none of ...

    Tell your story and help others

    Tell my story

    View more

    Intracranial Hypertension forum

    Question 359
    hi everyone. Is anyone here from Wales suffering with intercranial hypertension? 
    Question 381
    Just wanting to know others with IIH.  I had stent surgery in July 2016 to prevent blindness.  
    Question 555
    Has anyone else with this condition lost the ability to smell?  I can only smell really really strong smells.   

    Ask a question and get answers from other users.

    Ask a question

    View more

    Statistics of Intracranial Hypertension

    165 people with Intracranial Hypertension have taken the SF36 survey. Mean of Intracranial Hypertension is 1283 points (36 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

    View more

    Find your symptoms soulmates

    From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

    Symptoms soulmates

    Add your symptoms and discover your soulmates map

    Soulmates map