Intracranial Hypertension is when there is pressure on the brain caused by a build up of CSF fluid. The build up of fluid causes major migraines/headaches, nausea and vomiting, vision loss and tinnitus just to name a few.

Pseudotumor Cerebri (PTC)

Idiopathic Intracranial Hypertension (IIH)
Secondary Intracranial Hypertension (SIH)
Benign Intracranial Hypertension (BIH)
Pseudotumor Cerebri (PTC)


Digestive system
Digestive system
Nervous system
Nervous system


  • Migraines/headaches
  • Vision Loss
  • Nausea
  • Vomiting
  • Fatigue
  • Neck, shoulder or back pain
  • Double vision (diplopia)
  • Ringing in the ears that pulses in time with your heartbeat (pulsatile tinnitus)
  • Insomnia
  • Dizziness


  • Shunt surgery or stents
  • Diuretics
  • Lumbar punctures
  • Specialist who treat it

    Neurology Neurosurgery Ophthalmology

    Stories of Intracranial Hypertension

    Intracranial Hypertension stories
    In July of 2005, I had what I thought was the mother of all Migraines, which I have suffered from since I was 4 years old. I actaully lost my visoin for 2 days! That triggered an Emergency Room visit, where they directed me to a Neurologist for furth...
    Intracranial Hypertension stories
    Hi, I'm Shellie! I am a former RN, Director of Nursing and Legal Nurse Consultant. In all my 25+ years of nursing, I have never heard of Intracranial hypertension until I was dignosed. Like you, I have to research this little known condition. I ...
    Intracranial Hypertension stories
    Hi I am Pam, I am from Wales in the UK.  Back in 1984 I gave birth to my first child, a 9lb6oz son called James.  After about 3 months I started to get headaches, I originally thought they were just due to tiredness and being a new mother, ...
    Intracranial Hypertension stories
    myself and my eldest both have chiari and syringomyelia. i also have iih and hydrocephalus. my youngest son has polymicrogyria bilateral persyvian syndrome.
    Intracranial Hypertension stories
    I start having haedache since I was 15 years old but I never pay any attention to it untill I was 25 I was living un kentucky And I when to México for vacations I gain 25 pounds so when I come back to kentucky my headache were worse And I star...

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    Intracranial Hypertension forum

    Question 381
    Just wanting to know others with IIH.  I had stent surgery in July 2016 to prevent blindness.  
    Question 359
    hi everyone. Is anyone here from Wales suffering with intercranial hypertension? 

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    Statistics of Intracranial Hypertension

    141 people with Intracranial Hypertension have taken the SF36 survey. Mean of Intracranial Hypertension is 1269 points (35 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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