Story about Intracranial Hypertension .

my story

Jul 29, 2016

By: Nicolette


My story begin in June 2014. Was atmitted to hospital with severe headache, nausea, vommiting, dizzyniss, blackouts, and couldn't walk by myself. They did CT scans and MRI scan to see if there was a tumar or bleeding in my brain. They did a LP to test for a lot of stuff but didn't messure the pressure. Then they had to do a blood patch. Was in hospital for more than a week. Was Sent for another CT and MRI and then i was sent to a neurologist and she sent me for another MRI scan with contrast. And she tested me for epilepsy and did another LP and she test my pressure and it was 39 than she said i have pappiladema. And she started me on Diamox 1500mg a day. Was on that for about 4 months and than she did another LP and my pressure was stil at 37 so  in August 2015 she sent me to a neurosurgeon for a VP shunt. But he said my ventricles was to small and he fitted me with a LP shunt on 2 September 2015. Had my first revision on 6 November 2015 because the tubing pulled out of place at my front insision. Had my second revision February 2016 because of the tubing that pulled out again infront. And had my third revision on 11 June 2016. This time it pulled out of my spine. My headaches is under control as long as the shunt is intact. Still get light headaches sometime and still get nauseas and dizzy sometimes. But it is much better. My vision is another blurry story. 

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