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Is it easy to find a partner and/or maintain relationship when you have Intracranial Hypertension?

People with experience in Intracranial Hypertension give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Intracranial Hypertension. What are the possible difficulties in having a relationship?

Couple and Intracranial Hypertension

Is it easy to find a partner and/or maintain a relationship when you have Intracranial Hypertension?


When it comes to finding a partner and maintaining a relationship, having Intracranial Hypertension (IH) can present unique challenges. IH is a medical condition characterized by increased pressure inside the skull, which can lead to various symptoms such as severe headaches, vision problems, and difficulty with balance. While these challenges may impact one's daily life, they do not necessarily determine the success or failure of finding a partner or maintaining a relationship.


Finding a Partner:


While IH may pose certain obstacles, it is important to remember that everyone faces different challenges when it comes to finding a partner. The key lies in open communication, understanding, and finding someone who is supportive and empathetic. Here are a few factors to consider:



  • Self-Acceptance: It is crucial to accept and embrace your own condition before seeking a partner. Confidence in yourself and your abilities will attract potential partners who appreciate and value you for who you are.

  • Open Communication: When getting to know someone, it is important to be open about your condition. Sharing information about IH can help potential partners understand your needs and limitations, fostering a foundation of trust and empathy.

  • Supportive Environment: Look for a partner who is understanding and supportive of your condition. A compassionate partner will be willing to learn about IH, accompany you to medical appointments, and provide emotional support during challenging times.

  • Shared Interests: Focus on finding someone who shares your interests and values. Shared hobbies and activities can help strengthen the bond between partners, regardless of any health conditions.


Maintaining a Relationship:


Once you have found a partner, maintaining a healthy and fulfilling relationship requires effort from both individuals. Here are some tips to help navigate the challenges of IH:



  • Open and Honest Communication: Continuously communicate with your partner about your symptoms, limitations, and any changes in your condition. This will help them understand your needs and provide necessary support.

  • Empathy and Understanding: It is important for both partners to be empathetic and understanding towards each other's challenges. This includes being patient during times of illness or when symptoms worsen.

  • Adaptability: IH symptoms can be unpredictable, so it is essential to be adaptable and flexible in your relationship. This may involve making adjustments to plans or finding alternative ways to spend quality time together.

  • Seeking Support: Consider joining support groups or seeking professional counseling to help navigate the emotional and practical aspects of living with IH. This can provide additional guidance and resources for both partners.

  • Self-Care: Taking care of your own physical and mental well-being is crucial. By prioritizing self-care, you can better contribute to the relationship and maintain a positive outlook.


Conclusion:


While having Intracranial Hypertension may present certain challenges, it does not make it impossible to find a partner or maintain a relationship. Open communication, understanding, and finding a supportive partner are key factors in building a successful relationship. Remember that everyone faces unique obstacles, and with the right mindset and support, it is possible to find love and maintain a fulfilling relationship despite the challenges posed by IH.


Diseasemaps
13 answers
It can be difficult to maintain a relationship once you are diagnosed with Idiopathic intracranial hypertension. One reason is because IIH is considered an invisible illness. It is often hard for partners, spouses, loved ones, and others to understand how to deal with an illness they do not understand, and cannot see. Often, one person in the relationship becomes the caregiver. This can put added strain on the relationship. Medical costs, frequent hospitalizations and surgery can place more stress on the already overly taxed relationship.
Sexual needs may take a back seat due to the pain, medications, and exhaustion IIH patients experience.

Education is a way to help maintain a relationship, as well as communication between both parties and support groups, and counseling. It is possible to have a relationship while having IIH, but it does take effort on both partners. It takes time to adjust to the diagnosis and coming to terms with what is considered to be the new normal. If both parties are committed to each other, a healthy relationship is possible.

Posted Aug 12, 2017 by Christy 850
It is not easy at all to find/keep a partner when you have IIH. Sometimes you're not able to keep up with your partner or your partner isn't so understanding of your condition, which causes barriers between you two.

Posted Aug 13, 2017 by LaurynPatterson 1750
Your partner must be understanding and patient. It creates challenges but a relationship with the forgot person is doable!

Posted Aug 15, 2017 by Mommy2Five 1500
Because it is a invisible illness partner's or families find it hard I guess they have to be very understanding

Posted Aug 15, 2017 by Lynne 1600
Ive been a long term relationship the entire time Ive been sick. It is probably hard to find someone who understands what it is like with a chronic illness but when you do it will be totally worth it. You have so much to give just don't give up on happiness

Posted Aug 18, 2017 by Unique cheatom 2120
I think I am probably an exception since I have been married for 35 years and have an incredible husband who oversees all my medical care, takes me 5 hours to each of my Drs appts and then takes care of me at home and also have a full time job. After communicating with so many other people who have this disease I know that marriages and families have fallen apart and relationships are hard to keep. I really don't have any friends outside my family because that becomes just too hard to maintain but my family support system is awesome. Many people must rely on their friends for their support.

Posted Sep 9, 2017 by Linda 200
It's not easy the rite person will take you for who you are your illness dose not define you

Posted Oct 18, 2017 by Sara 2000
absoultely if they can understand the condition, help them with leaflets and explain the conditon. its not easy for partners but patience is the key

Posted Oct 19, 2017 by Julie 2000
It can be , however if you already have a strong healthy relationship it can with stand the pressures of this illness.
for partners I would suggest plenty of research an joining a support group. same for those with IH .
patience for both parties.

Posted Oct 28, 2017 by lisa 3365
It's not easy but it can be done just communicate and be open.

Posted Oct 29, 2017 by So 2000
Intracranial hypertension should not affect the ability to find and maintain relationships.

Posted Feb 18, 2018 by Kelly 2560
Translated from spanish Improve translation
If it is the same thing that for any person with or without hypertension

Posted Jun 7, 2017 by Lo 2000

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In July of 2005, I had what I thought was the mother of all Migraines, which I have suffered from since I was 4 years old. I actaully lost my visoin for 2 days! That triggered an Emergency Room visit, where they directed me to a Neurologist for furth...
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_I start having haedache since I was 15 years old but I never pay any attention to it untill I was 25 I was living un kentucky And I when to México for vacations I gain 25 pounds so when I come back to kentucky my headache were worse And I start los...
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Hi, I'm Shellie! I am a former RN, Director of Nursing and Legal Nurse Consultant. In all my 25+ years of nursing, I have never heard of Intracranial hypertension until I was dignosed. Like you, I have to research this little known condition. I am f...
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Hi I am Pam, I am from Wales in the UK.  Back in 1984 I gave birth to my first child, a 9lb6oz son called James.  After about 3 months I started to get headaches, I originally thought they were just due to tiredness and being a new mother, but i wa...
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Diagnosed at 12 at an AVERAGE weight, was not overweight. Allergic to diamox, topamax. Also diagnosed with migraines Now doctors arent even sure I have IIH It was due to an injury (we're assuming from trauma at young age) 3 spinal taps, none of ...

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Intracranial Hypertension forum

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hi everyone. Is anyone here from Wales suffering with intercranial hypertension? 
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Just wanting to know others with IIH.  I had stent surgery in July 2016 to prevent blindness.  
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Has anyone else with this condition lost the ability to smell?  I can only smell really really strong smells.   

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