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What is the life expectancy of someone with Intracranial Hypertension?

Life expectancy of people with Intracranial Hypertension and recent progresses and researches in Intracranial Hypertension

Intracranial Hypertension life expectancy

Intracranial Hypertension (IH) is a condition characterized by increased pressure around the brain. The life expectancy of individuals with IH can vary depending on various factors such as the underlying cause, severity of symptoms, and timely treatment. Early diagnosis and appropriate management can significantly improve outcomes and quality of life for those affected. It is crucial for individuals with IH to work closely with healthcare professionals to monitor and control the condition. By adhering to recommended treatments, lifestyle modifications, and regular follow-ups, individuals with IH can lead fulfilling lives. However, it is important to consult with a healthcare provider for personalized information regarding life expectancy in individual cases.




Intracranial Hypertension (IH), also known as pseudotumor cerebri or idiopathic intracranial hypertension, is a condition characterized by increased pressure within the skull. This elevated pressure can lead to various symptoms such as severe headaches, vision problems, nausea, and in some cases, even permanent vision loss. While IH can affect individuals of any age, it is most commonly diagnosed in women of childbearing age who are overweight or obese.



Determining the life expectancy of someone with Intracranial Hypertension is a complex task as it depends on several factors. The severity of the condition, the underlying cause, the effectiveness of treatment, and the presence of any comorbidities all play a role in determining the prognosis.



Treatment for Intracranial Hypertension primarily focuses on managing the symptoms and reducing the pressure within the skull. This often involves a combination of lifestyle changes, medication, and in some cases, surgical interventions. Weight loss, if applicable, is often recommended to alleviate symptoms and improve overall health. Medications such as diuretics may be prescribed to reduce fluid buildup and lower intracranial pressure. Surgical options, such as optic nerve sheath fenestration or shunt placement, may be considered in severe cases where other treatments have been ineffective.



It is important to note that early diagnosis and appropriate treatment can significantly improve the prognosis for individuals with Intracranial Hypertension. By effectively managing the condition and reducing intracranial pressure, many individuals are able to experience relief from symptoms and prevent further complications.



However, if left untreated or poorly managed, Intracranial Hypertension can lead to serious complications that may impact life expectancy. The increased pressure within the skull can cause damage to the optic nerves, leading to vision loss. Additionally, the persistent strain on the brain can result in neurological deficits and cognitive impairments. These complications can significantly impact an individual's quality of life and overall prognosis.



Research on the long-term outcomes and life expectancy of individuals with Intracranial Hypertension is limited, making it challenging to provide a precise answer. The available studies suggest that with appropriate treatment and management, the majority of individuals with Intracranial Hypertension can lead relatively normal lives and have a normal life expectancy.



However, it is important to recognize that each case is unique, and some individuals may experience more severe symptoms or complications that can impact their prognosis. Factors such as the presence of comorbidities, response to treatment, and overall health can influence the long-term outlook.



Regular medical follow-up is crucial for individuals with Intracranial Hypertension to monitor their condition, adjust treatment as needed, and address any emerging complications. By working closely with healthcare professionals, individuals can optimize their management strategies and improve their overall prognosis.



In conclusion, while it is challenging to provide a definitive life expectancy for individuals with Intracranial Hypertension, early diagnosis, appropriate treatment, and effective management can significantly improve outcomes. With proper care, the majority of individuals with this condition can lead fulfilling lives and have a normal life expectancy. However, it is essential to recognize the individual variability and the potential impact of complications on prognosis. Regular medical follow-up and adherence to treatment plans are crucial for optimizing outcomes and ensuring the best possible quality of life.


Diseasemaps
20 answers
It doesnt really have one

Posted Feb 21, 2017 by Kate 1052
Hasn't been documented if life expectancy has been reduced.
Complications include loss of vision, possible tumour if pressures are too high, shunts can become infected. Headaches are unbearable and possibly job loss.
Currently no new development on how to overcome this condition..All findings are heresay

Posted Feb 21, 2017 by Colleen 1000
Really a morbid question. It really depends on what you choose to do and how to handle the disease.

Posted Feb 21, 2017 by Deirdra 1000
Life expectancy I believe is normal , I have heard those with the disease have a higher suicide rate which is sad but true. Those who can't find relief or a neurologist willing to listen and help I think can feel hopeless . It is a life changing thing you just have to try to be positive and proactive

Posted Feb 21, 2017 by Bloomingbeauti 1102
The life expectancy for someone with intracranial hypertension is the same as a non-sufferer. The latest improvements include clinical trials in the UK for new medications and assisted weight loss to look for improvement in the condition among sufferers as they lose weight.

Posted Feb 21, 2017 by Amy 1495
Life expectancy about 75 - 79 years. It is no different for people with IIH. There are however complicating factors, such as if you are shunted, you can be more prone to infections, that can cause life threatening diseases such as meningitis. If papilledema is not treated or you present with treatment resistant papilledema, you are at risk of vision loss.

Research has shown that weight loss can contribute to the decline of symptoms and would be beneficial for your whole health. Optic nerve sheath decompression and fenestration and shunting has proofed to be successful but not perfect. Gastric bypass surgery can also assist overweight patients.

Posted Feb 22, 2017 by Alet 1002
Although IIH just not cause death we can develop symptoms that are life thretening:
Strokes
Seizures
Depression which has lead some to suicide
Etc

Posted Feb 23, 2017 by Diane 1053
I don't think there's a particular life expectancy.. other issues can lead to someone not being here.

Posted Feb 24, 2017 by Maryssa 2100
Idiopathic intracranial hypertension is not considered a terminal illness, yet people do die from it. It might be labeled as effecting women of child-bearing age who are obese, but it also affects men and children. Risks include strokes, brain bleeds, seizures, infections from surgeries and lumbar punctures, and frequent hospitalizations.

Posted Aug 12, 2017 by Christy 850
If you're being treated, you cannot die from IIH. If untreated, depends on you and your body. There is no definite answer. Just get treated asap!!

Posted Aug 13, 2017 by LaurynPatterson 1750
Same as it was without the disease. There is risk with shunt surgeries with infection and things like that as in any surgery.

Posted Aug 15, 2017 by Mommy2Five 1500
Just as any average person

Posted Aug 15, 2017 by Lynne 1600
People with Intracranial Hypertension can live a full and healthy life.

Posted Aug 18, 2017 by Unique cheatom 2120
As long as anyone els

Posted Oct 18, 2017 by Sara 2000
normal life expectancy

Posted Oct 19, 2017 by Julie 2000
same as any one else.
we face many complications like infections , depression, illness

Posted Oct 28, 2017 by lisa 3365
I'm unsure but confident in our medical technology and research.

Posted Oct 29, 2017 by So 2000
Intracranial hypertension is not terminal.
The biggest risk according to the medical profession is the risk of blindness.
But there is also a huge risk to your well-being. There is a huge risk of functional disability and loss of quality of life, and there are many individuals who struggle with the pain and depression. Some individuals struggle so much they have ended their life.
More research is needed on the quality of life issues for people with intracranial hypertension, and more research on addressing the ongoing pain issues that cause the functional disabilities. The intracranial research foundation is working towards this.

Posted Feb 18, 2018 by Kelly 2560
Translated from spanish Improve translation
High always to relocate controls

Posted Jun 7, 2017 by Lo 2000

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In July of 2005, I had what I thought was the mother of all Migraines, which I have suffered from since I was 4 years old. I actaully lost my visoin for 2 days! That triggered an Emergency Room visit, where they directed me to a Neurologist for furth...
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_I start having haedache since I was 15 years old but I never pay any attention to it untill I was 25 I was living un kentucky And I when to México for vacations I gain 25 pounds so when I come back to kentucky my headache were worse And I start los...
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Hi, I'm Shellie! I am a former RN, Director of Nursing and Legal Nurse Consultant. In all my 25+ years of nursing, I have never heard of Intracranial hypertension until I was dignosed. Like you, I have to research this little known condition. I am f...
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Hi I am Pam, I am from Wales in the UK.  Back in 1984 I gave birth to my first child, a 9lb6oz son called James.  After about 3 months I started to get headaches, I originally thought they were just due to tiredness and being a new mother, but i wa...
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Diagnosed at 12 at an AVERAGE weight, was not overweight. Allergic to diamox, topamax. Also diagnosed with migraines Now doctors arent even sure I have IIH It was due to an injury (we're assuming from trauma at young age) 3 spinal taps, none of ...

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Intracranial Hypertension forum

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hi everyone. Is anyone here from Wales suffering with intercranial hypertension? 
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Just wanting to know others with IIH.  I had stent surgery in July 2016 to prevent blindness.  
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Has anyone else with this condition lost the ability to smell?  I can only smell really really strong smells.   

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