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Which are the symptoms of Intracranial Hypertension?

See the worst symptoms of affected by Intracranial Hypertension here

Intracranial Hypertension symptoms

Symptoms of Intracranial Hypertension


Intracranial Hypertension, also known as pseudotumor cerebri or idiopathic intracranial hypertension, is a condition characterized by increased pressure within the skull. This increased pressure can cause a variety of symptoms that can significantly impact a person's quality of life. It is important to recognize these symptoms and seek medical attention promptly for proper diagnosis and treatment.



1. Headaches


Headaches are one of the most common symptoms of intracranial hypertension. These headaches are typically described as severe, throbbing, and persistent. They are often worse in the morning or upon waking up and may improve throughout the day. The pain is usually located at the front of the head, behind the eyes, or at the back of the head.



2. Vision Problems


Vision problems are another hallmark symptom of intracranial hypertension. Individuals may experience blurred vision, double vision, or transient visual obscurations where their vision goes dark for a few seconds. They may also have difficulty with peripheral vision, leading to a narrowing of their visual field. In severe cases, vision loss can occur.



3. Tinnitus


Tinnitus, or ringing in the ears, is a common symptom experienced by individuals with intracranial hypertension. The ringing sound can be continuous or intermittent and may vary in intensity. It can be quite bothersome and affect a person's ability to concentrate or sleep.



4. Nausea and Vomiting


Nausea and vomiting are common symptoms associated with increased intracranial pressure. These symptoms can be particularly severe in the morning or after changes in body position, such as standing up quickly. They may also be accompanied by dizziness or vertigo.



5. Neck and Shoulder Pain


Neck and shoulder pain are frequently reported symptoms in individuals with intracranial hypertension. The pain is often described as a dull ache or stiffness and may radiate from the back of the head down to the shoulders. It can be aggravated by certain movements or prolonged periods of sitting or standing.



6. Cognitive and Behavioral Changes


Intracranial hypertension can also affect a person's cognitive and behavioral functioning. Some individuals may experience difficulties with concentration, memory, and problem-solving. They may also exhibit changes in mood, such as irritability, depression, or anxiety.



7. Sleep Disturbances


Sleep disturbances are common in individuals with intracranial hypertension. They may have trouble falling asleep, staying asleep, or experience frequent awakenings during the night. Sleep disturbances can further contribute to fatigue and worsen other symptoms.



8. Papilledema


Papilledema refers to swelling of the optic disc, which is the part of the eye where the optic nerve enters. It is a key clinical finding in intracranial hypertension and can be observed during an eye examination. Papilledema is often associated with vision problems and can lead to permanent vision loss if left untreated.



9. Generalized Symptoms


In addition to the specific symptoms mentioned above, individuals with intracranial hypertension may also experience more generalized symptoms, such as fatigue, dizziness, generalized pain, and difficulty with balance.



If you are experiencing any of these symptoms, it is important to consult a healthcare professional for a proper evaluation. Prompt diagnosis and treatment can help manage the symptoms and prevent potential complications associated with intracranial hypertension.


Diseasemaps
45 answers
Head ache back ache plus shoulders when pressure is up

Posted Feb 21, 2017 by Kate 1052
Headaches

Posted Feb 21, 2017 by Karlar71 100
Tension headaches, dizziness. They are like my head is being squished but I use CBD to treat it

Posted Feb 21, 2017 by Reagan 300
Headaches, nausea, whooshing,

Posted Feb 21, 2017 by Colleen 1000
Headache, blindness, fatigue, memory loss

Posted Feb 21, 2017 by Bloomingbeauti 1102
The feeling of a vice squeezing you're head. A vice you can't loosen or remove. It just sits there squeezing. Your eyes about to pop. It's the worst.

Posted Feb 21, 2017 by Deirdra 1000
To me headaches and vision problems are the worst part of this disease. If I could get rid of the headaches, that would be the first symptom to go. It holds me back from being the person I have been.

Posted Feb 21, 2017 by Jennifer 250
The worst symptom of all would have to be the migraines, sometimes they can be so painful, no one around you could possibly understand. For me, they happen so often, that even the people close to me started to roll their eyes at me and get fed up with them. Um, hello, do you think I don't get fed up with them? The ringing in the ears I'd choose to get rid of although you get used to it most the time. The visual disturbances can be annoying when watching films and television, especially when you're already having to watch them through light sensitivity adapted glasses or sunglasses. Please don't be put off by what I'm saying. Life isnt crappy with Ih or iih, you just learn to adapt. You can still lead a normal life.

Posted Feb 21, 2017 by Cherri-Rose 100
Headache,very poor eyesight, no energy

Posted Feb 21, 2017 by Rangi 250
Chronic high pressure headaches and visual changes. However both can be managed.

Posted Feb 21, 2017 by Amy 1495
Constant pressure headaches that feel remarkably like a brain freeze except it never goes away, Vision loss starting in the peripherals, constant exhaustion. Then there is the horrible symptoms from the the medication they use to treat it, Diamox. Diamox can cause acidosis and interstitial cystitis.

Posted Feb 21, 2017 by Heather 351
The headaches are the first thing that I wanted to be taken care of. But others are the light sensitivity, and the tinnitus.

Posted Feb 22, 2017 by Kathleen 450
Vision problems which leads to blindness.
EXTREME, dibiltaing pain!

When your brain is under pressure it begins to shut down. There have been times when I have blacked out, felt different body parts just shut off and more. The pain takes away any normal life you may have had. I find myself snapping at loves ones, I do not like to go out and socialize, thinking/concentrating go out and driving isn't safe. Well for me at least.

Posted Feb 22, 2017 by Diane 1053
Vision disturbances.
Headaches.
Difficulties with balance and coordination.
Pain.
Tinnitus.
Depression.

Posted Feb 22, 2017 by Alet 1002
Migraines - high and low pressure.

Posted Feb 22, 2017 by leighrach 750
Headaches and visual disturbances

Posted Feb 23, 2017 by Rhiannon 450
Is there a worst? Lol. The headaches, eye pressure, back and neck pain, papilladema, all the doctors appts. And of course, the shunt if you need it...but meds suck too

Posted Feb 24, 2017 by Maryssa 2100
Symptoms which affected me was blackout
Tinnitus (ringing ear) weakness
The symptoms I would get rid of was blackout because it is affecting my eyes.

Posted May 18, 2017 by Dr.M 701
Headaches, dizziness, blindspots, whooshing sounds, nausea, depression, lack of ability of so the routine chores

Posted May 29, 2017 by Pooja A 600
Headaches, Vision loss, whooshing in the ears

Posted May 29, 2017 by Talitha 400
The most limiting symptoms would be the headaches and vision loss.
Depending on the damage the pressure does to your optic nerve, you could potentially lose your vision which makes living a normal life difficult.
If i could get rid of some of my symptoms, i would definitely get rid of the headaches and vision loss.

Posted Aug 11, 2017 by hannah.l18 1100
Papilledema and headaches

Posted Aug 12, 2017 by Brianna 300
For me, it is the headaches that limit the most. I used to be an active person and that is severly limited now. It also limits my cognition some days, my ability to follow complex and sometimes simple commands, and my relationships with others. I deal with a great amount of nausea as well. I would get rid of the headaches and nausea since they are the precursor to most of the rest of the problems that occur.

Posted Aug 12, 2017 by Jamie 100
Blindness, pain from debilitating pressure headaches, and pulsatile tinnitus

Posted Aug 12, 2017 by Christy 850
Headaches/pressure issues

Posted Aug 13, 2017 by LaurynPatterson 1750
Unrelenting headaches

Posted Aug 15, 2017 by Mommy2Five 1500
Throbbing permanent headache which is constantly there and affects your eyes

Posted Aug 15, 2017 by Lynne 1600
The migraine that come with Intracranial Hypertension are by far the worst. They hurt worst than any headache Ive ever had.

Posted Aug 18, 2017 by Unique cheatom 2120
Tinnitus, headache, neck pain, visual disturbances,

Posted Oct 16, 2017 by Melanie 600
Head pain and dizziness

Posted Oct 17, 2017 by Lucinda Sara (VDubsTDi) 511
Vision loss headache vomiting dizziness migraine if I could I would reverse the vision loss

Posted Oct 18, 2017 by Sara 2000
Headaches and Vision problems.

Posted Oct 19, 2017 by Julie 2000
Severe headache
Blurred vision
Depression
Confusion

Posted Oct 20, 2017 by Sarah 500
vision loss, severe head pain, nausea,

Posted Oct 28, 2017 by lisa 3365
Spinal headaches, dizziness, swelling

Posted Oct 29, 2017 by So 2000
Unrelenting headache

Posted Oct 29, 2017 by Dotty 450
Pappilioedema (blurred optic discs) - may be reported as blurred vision, double vision, visual obscurities, floaters, blind spots, poor periferal vision, etc
Headache (pressure type, often worse in morning's, often worse with Valsalva movement)
Tiniitius (often pulsatile/whooshing type)
Tightness in neck/shoulders
Some people also report Nausea, Dizziness, etc

Posted Feb 18, 2018 by Kelly 2560
Headache
Eye pain
Blurry vision
Vision problems

Posted Feb 18, 2018 by Tiffany-Diane 400
Constant throbbing headache
Blurred vision
Feeling sick

Posted Feb 18, 2018 by Sarahhxoxx 700
Headaches.
Visual loss or disturbance.
Pulsatile Tinnitus
Swelling of optic nerve.

Posted Jul 12, 2018 by Michelle 2050
Vision impairment
Low energy
Pain, neuropathy
Tinnitus
Dizziness
Nausea

Posted Sep 3, 2019 by Kristine 100
headpain, nausea, tinnitus, dizzyness, brain fog

Posted Aug 12, 2023 by K 300
Translated from spanish Improve translation
Vomiting. Headaches. Papilledema.

Posted Jun 7, 2017 by Lo 2000
Translated from portuguese Improve translation
Visual change resulting from papilledema (loss of acuity and visual field)
Headaches

Posted Oct 30, 2017 by Valquiria 500

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World map of Intracranial Hypertension

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Stories of Intracranial Hypertension

INTRACRANIAL HYPERTENSION STORIES
Intracranial Hypertension stories
In July of 2005, I had what I thought was the mother of all Migraines, which I have suffered from since I was 4 years old. I actaully lost my visoin for 2 days! That triggered an Emergency Room visit, where they directed me to a Neurologist for furth...
Intracranial Hypertension stories
_I start having haedache since I was 15 years old but I never pay any attention to it untill I was 25 I was living un kentucky And I when to México for vacations I gain 25 pounds so when I come back to kentucky my headache were worse And I start los...
Intracranial Hypertension stories
Hi, I'm Shellie! I am a former RN, Director of Nursing and Legal Nurse Consultant. In all my 25+ years of nursing, I have never heard of Intracranial hypertension until I was dignosed. Like you, I have to research this little known condition. I am f...
Intracranial Hypertension stories
Hi I am Pam, I am from Wales in the UK.  Back in 1984 I gave birth to my first child, a 9lb6oz son called James.  After about 3 months I started to get headaches, I originally thought they were just due to tiredness and being a new mother, but i wa...
Intracranial Hypertension stories
Diagnosed at 12 at an AVERAGE weight, was not overweight. Allergic to diamox, topamax. Also diagnosed with migraines Now doctors arent even sure I have IIH It was due to an injury (we're assuming from trauma at young age) 3 spinal taps, none of ...

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Intracranial Hypertension forum

INTRACRANIAL HYPERTENSION FORUM
Intracranial Hypertension forum
hi everyone. Is anyone here from Wales suffering with intercranial hypertension? 
Intracranial Hypertension forum
Just wanting to know others with IIH.  I had stent surgery in July 2016 to prevent blindness.  
Intracranial Hypertension forum
Has anyone else with this condition lost the ability to smell?  I can only smell really really strong smells.   

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