Story about Juvenile Idiopathic Arthritis .

If you need some encouragement here is my story!

Jan 23, 2016

By: Arrian


Hi my name is Arrian I am 19 and have systematic JRA since I was six months old. I am involved with the arthritis foundation, my hospitals, and volunteering at school. My life has been a series of ups and downs. My arthritis at most times have been crippling. From needing to be carried around when I was 5 by my mom, teacher, and friends or being pushed in a wheelchair/Stroller. When I was in 3rd I got a scooter where I had more freedom. But no freedom from pain. I have been taking medicine for my JA before I can even remember. I started biologics at 18 months such as methotrexate and remicade, but nothing have worked. for about 6 years I have been on IVIG this helps keep my arthritis under control, but doesn't keep the pain away. Of course like anyone with an auto immune disease I've been on steroids all my life which had also given me troubles. I have 3 brothers and they beg me to go outside and play with them, but most of the time I have too tell them I'm too sick or too sore to go play with them, when I see their faces when I tell them it breaks my heart. When I was 10 years old I went into septic shock I was in a coma for 2 months and rehab another 2 months. Septic shock caused me too lose my fingertips on my left hand and my toes. The summer I was going into 6th grade I went to camp MASH where I met people just like me they became my best friends. Two years ago was my last year at MASH I have been going for 6 years. When I was 13 I had my left hip replaced which caused me to have unbearable pain for 6 months too a year. Then my freshman year I had 8 ear infections in a year so I had a mastoidectomy. They found out the ear infection had ate through my skull I was on bed rest for a year. All of that caused me to fail 2 classes from being gone. But now I am an a student I have a GPA of 3.2 and am looking to going to college to become a child life specialist at Edgewood college in Wisconsin.Which I am proud to say I have been accepted into and will be going to Edgewood College for Child Life! Through all the struggle my whole family and friends have stuck by my side the entire time.

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