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Kallmann Syndrome
Advice
Advice of Kallmann Syndrome
Communicating with other patients about this rare condition helps enormously.
by Neil Smith
Finally having an answer why I wasn't going through puberty like every else!
by Clinton
Over a year being on testosterone shots
by J. Whitman
I learned I had Kallmans at 13 or 14, and started on testosterone injections soon after.
by Ray
Staying on reliable hormone replacement therapy
by Aaron Davis
Starting Treatment, it would have been worse otherwise
by Vinay Chaudhary
I try to stay happy despite my health problems: true happiness is the state of your mind and inner self and it does not depend on external circumstances/Я стараюсь не терять радости, несмотря на болезнь
by Ivan
The diagnose. Finally I know what I really have.
by Maria
voice
by Mokhtar
Having great doctors always helps
by Nick K.D Chaleunphone
http://www.thedoctorstv.com/articles/2261-embarrassing-medical-mysteries-solved
by Brandon Westfall
http://www.youtube.com/tehHilariousGales
by Jared Gale
Healthy eating had help me to control my weight, feel more energy.
by Jose Cotto
Maintaining Contact with other sufferers via the Internet attending Kallmanns based Social meets
by Paul conibeer
My friends, family and boyfriend being there for me
by Mekalia Mason
Friends
by wedekinh
My family. They're always by my side
by Mirjana
passive aggressive
by Eugene
Testosterone injections, giving me a taste manhood
by Emlyn Jones
Connecting to other people with K.S definitely helps
by Daniel
Hablar de mi enfermedad con mi familia y mis amigos.
by Dyan
Diagnosis. The knowledge that what was wrong with me had a name, meant I wasn't alone.
by Lee
Diagnosis
by Amber
Depo testrone
by AZOKIE1959
whatever the problem, there is always a solution
by mustapha
Having been diagnosed early helped had time to face what was happening.
by Phee
Medical monitoring with my endocrinologist who recommended a special diet and medication with drospirenone and ethinylestradiol.
by Elena
Not having this cursed disease
by Samriddhi
Looking for suppourt
by FrankieJane
Nebido
by Gilvanio
Access to experienced medical experts and other patients with the condition allows people to keep up to date with new treatment methods.
by Neil Smith
I give IM testosterone injections to myself every 2 weeks, which took about 5 years to completely 'finish puberty'.
by Clinton
My parents who get as much info as they can
by J. Whitman
I am married and went through fertility treatments, which were successful and as a result have a 14 year old son.
by Ray
Not allowing Kallmann's Syndrome to define me
by Aaron Davis
Talking to others with the same condition, on FB group for ex.
by Vinay Chaudhary
My wife and my friends support me/ Меня поддерживают жена и друзья
by Ivan
Tell my boyfriend (now my husband) about my problem and he accepted.
by Maria
face
by Mokhtar
My family never understands me
by Nick K.D Chaleunphone
https://www.youtube.com/watch?v=pjSF4TMEf98
by Brandon Westfall
Kallmann Syndrome group help me to know there is always someone like me.
by Jose Cotto
Help and support from a few good friends in the KS community
by Paul conibeer
Music, helping others and ASL
by Mekalia Mason
Sport
by wedekinh
depression
by Eugene
Putting a name to my condition. KALLMANN SYNDROME.
by Emlyn Jones
Meeting my wife and fellow K.S partner has been the biggest help
by Daniel
Saber que aunque no huelas, a veces puede ser un alivio. (Según lo que me han contado)
by Dyan
Being as open about my condition as possible.
by Lee
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