A Kallmann Syndrome interview .

Aaron Davis's interview


How did all start?

I was always smaller than my peers but this became more and more evident in Jr. High and High School. As everyone began to grow and develop, I remained the same. At age 17, I was 5'3" and weighed 98lbs.

Do you already have a diagnosis? How long did it take you to get it?

A family doctor referred me to an Endocrinologist at age 17. The endocrinologist ran several tests and diagnosed me with Kallmann's Syndrome

For what medical specialties have you been treated? What has been the most useful specialty for your?

I see an Endocrinologist. This has been helpful, even though most Primary Care Physicians will prescribe hormone replacement therapy. Endocrinologists tend to be up on the most recent developments.

What has been the most useful thing for you so far?

Good hormone replacement therapy. I prefer testosterone injections

What have been your biggest difficulties?

Social and emotional problems stemming from delayed development in school. Infertility was also a problem.

How has your social and family environment reacted? Have your social or family relationships changed?

Family has always been supportive.

What things have you stopped doing?

I've tried patches and the gel as hormone replacement therapy and do not prefer them.

What do you think about the future?

As I get older I deal with more symptoms (bad teeth, vision, etc) and it feels kind of like uncharted territory.

So far, which years have been the best years in your life? What have you done during them?

Now. I am finally dealing with the mental/emotional side of living with KS.

What would you like to do if you didn’t have your condition?

I think I would be more successful professionally because there is a certain arrested development that comes with a lack of physical development.

If you had to describe your life in a sentence, what would it be?

Climbing that mountain (or at least out of the ditch)

Finally, what advice would you give to a person in a similar situation?

Get the best treatment. Don't neglect the emotional side of things but don't let KS define you either.


Dec 5, 2017

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