- Kawasaki Disease
- Interviews
Nidal's interview
How did all start?
My son had Fever, tummy pain headache
Do you already have a diagnosis? How long did it take you to get it?
It took 14 days to get diagnosed.
For what medical specialties have you been treated? What has been the most useful specialty for your?
General practitioners, Cardiologists, rheumatologist, Hematilogists.
What has been the most useful thing for you so far?
Following with Cardiologist
What have been your biggest difficulties?
The medication for Kawasaki Disease didn’t work ( immunoglobulin)
How has your social and family environment reacted? Have your social or family relationships changed?
We had lots of support from family and friends, the whole ordeal put so much pressure on all of us as a family..we passed all that now it’s being 10 years.
What things have you stopped doing?
We were tied up with tests all the time..then we went back to normal.
What do you think about the future?
Hoping for a bright future for my son
So far, which years have been the best years in your life? What have you done during them?
After recovering from the illness we did a lot of traveling.
What would you like to do if you didn’t have your condition?
My son has the condition.. he wanted to play soccer which was forbidden for him.. but now he is playing and he is happy
If you had to describe your life in a sentence, what would it be?
Blessed
Finally, what advice would you give to a person in a similar situation?
Don’t get trapped by it all, there is a light at the end of the tunnel.. live, laugh and be free