There are 336 people in the Klippel-Feil Syndrome map

Klippel-Feil Syndrome life expectancy

What is the life expectancy of someone with Klippel-Feil Syndrome?

11 answers
Celebrities with Klippel-Feil Syndrome

Celebrities with Klippel-Feil Syndrome

3 answers
Is Klippel-Feil Syndrome hereditary?

Is Klippel-Feil Syndrome hereditary?

5 answers
Is Klippel-Feil Syndrome contagious?

Is Klippel-Feil Syndrome contagious?

5 answers

Stories of Klippel-Feil Syndrome

STORY
Klippel-Feil Syndrome stories
I am 24 years old and I live in Denver, Colorado. I was diagnosed with KFS since I was 2-4 and I have bilateral hearing loss with chronic respiratory illness. I am also a medical cannibis user, which may falter my breathing, but I am an active person...
Klippel-Feil Syndrome stories
I was diagnosed with kfs type 4 as a child. It was challenging. I was never able to do sports and was always treated like glass. Which made it hard to find friends. At age 15 I underwent a 16 hour extensive surgery to save my life. After I was suppos...
Klippel-Feil Syndrome stories
Was diagnosed when he was couple days old. He had heart value that wouldn't closed and it healed on its own, he was born with multicyst kidney so he only has one kidney. Mental and development delays, 4th n 5th vertebrae infused giving him short neck...
Klippel-Feil Syndrome stories
she has been suffering tremendous pains and she hasn't find a doctor that can help her, she had a surgery but it was done wrong.  
Klippel-Feil Syndrome stories
Our daughter has Klippel-Feil c3-c6, torticoli, sleeping apnea, cervical ribs and fused ribs, spinal bifida occulta, and scoliosis which is cause by a extra vertebrae 

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Klippel-Feil Syndrome forum

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Statistics of Klippel-Feil Syndrome

17 people with Klippel-Feil Syndrome have taken the SF36 survey. Mean of Klippel-Feil Syndrome is 1553 points (43 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Klippel-Feil Syndrome