Story about Klippel-Feil Syndrome .

A Klippel-Feil Syndrome story

May 24, 2017


I am 31 years old and I found ouut when I was 18/19. I was diagnosed with other deformities sooner but not the KFS. I have an 11yr old son who because of premature labor(30wks) and not being testted for Group Strep B (I think they do at 32 weeks) he got meningitis and now has Cerebral Palsyh and many other medical issues. I am in mild pain since receivinf botox abd not working. But when i try to do "normal" things it triggers the pain. I feel lazy and depressed but know this is what I have to do so I don't have pain attacks (as I call them). Haven't found a doctor who knows about this disease. 

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Klippel-Feil Syndrome causes

Which are the causes of Klippel-Feil Syndrome?

Klippel-Feil Syndrome advice

Which advice would you give to someone who has just been diagnosed wit...

Couple and Klippel-Feil Syndrome

Is it easy to find a partner and/or maintain relationship when you hav...

Prevalence of Klippel-Feil Syndrome

What is the prevalence of Klippel-Feil Syndrome?

What is Klippel-Feil Syndrome

What is Klippel-Feil Syndrome

ICD9 and ICD10 codes of Klippel-Feil Syndrome

ICD10 code of Klippel-Feil Syndrome and ICD9 code

Klippel-Feil Syndrome jobs

Can people with Klippel-Feil Syndrome work? What kind of work can they...

Klippel-Feil Syndrome cure

Does Klippel-Feil Syndrome have a cure?