Stories of Langerhans Cell Histiocytosis

Langerhans Cell Histiocytosis stories
Langerhans Cell Histiocytosis stories
I was diagnosed with what was then called Histiocytosis-x at the age of 2 1/2. I had it bilaterally of the mastoids and underwent chemotherapy for six months.
Langerhans Cell Histiocytosis stories
i was 18 when I was diagnosed, 2 months before my 19th birthday. It shocked me when I heard the words and how they described it to me. I felt sick it felt like the world just stopped. But I started to deal with it. I've been fighting it since June 20...
Langerhans Cell Histiocytosis stories
I am a mother of three very active children. My husband is in the Navy and was stationed in CT. I had a bad hip pain and went t9 the Dr. They did an MRI and found nothing. A year later we got stationed on WA and on my trip across I started having hor...
Langerhans Cell Histiocytosis stories
Summer started with pain in her right leg, took her to doctors, was put down to growing pains, after a cpl of weeks her left leg started sticking out at the bottom when she walked, the more she walked the more it stuck out, X-ray & scan were fine...

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Langerhans Cell Histiocytosis forum

Question 288
My pulmonary doctor has seen 4 cases of this at a hospital for maybe 100,000 vets. Face book shows about 15 of us on one page... I'd like to know how many folks served especially in the early 90's Gulf war 1 taking the anthrax vaccination 

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Statistics of Langerhans Cell Histiocytosis

4 people with Langerhans Cell Histiocytosis have taken the SF36 survey. Mean of Langerhans Cell Histiocytosis is 1834 points (51 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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