- Legg-Calvé-Perthes disease
- Interviews
Martin's interview
How did all start?
My first hip got the disease at age 5, then the other at age 6 or 7. Since then i have felt the pain most of the days ever since.
Do you already have a diagnosis? How long did it take you to get it?
It took me about 1,5 years. After around 5-8 visits to the hospitals around in my country.
For what medical specialties have you been treated? What has been the most useful specialty for your?
I went to physio for about 6-8 years as a kid. It helped somethimes.
What has been the most useful thing for you so far?
Alcohol and different kinds of drugs.
What have been your biggest difficulties?
My biggest difficulties has been to go to school, cities etc. Dont like to walk on concrete or anything that is hard or flat.
How has your social and family environment reacted? Have your social or family relationships changed?
It is very hard to have family or good friends when you are in pain. Right now i only got a few friends around me. If i socialise with randoms or old classmates im drunk...
What things have you stopped doing?
Family, friends, school (still study, but it is hard with around 1-7 hours of sleep each night), work.
What do you think about the future?
Get a job with a very nice chair!
So far, which years have been the best years in your life? What have you done during them?
The best years was when i discovered alcohol, i still regret that i had a "off" period from it (around 1 year, it was a living hell).
What would you like to do if you didn’t have your condition?
Exercise, mountain haiks, travel to cities, sports.
If you had to describe your life in a sentence, what would it be?
A chill life, with alot of up's and down's. And not a normal one.
Finally, what advice would you give to a person in a similar situation?
Eat clean and healthy! Find good friends that is going to last through life. Dont start with drugs (only if it helps). Dont give a shit about others. Dont give a fuck what is normal or not. Do your own thing basically. And have a normal sleeping pattern, even though you only sleep 1-3 hours for a couple off weeks.
