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Living with Legg-Calvé-Perthes disease. How to live with Legg-Calvé-Perthes disease?

Can you be happy living with Legg-Calvé-Perthes disease? What do you have to do to be happy with Legg-Calvé-Perthes disease? Living with Legg-Calvé-Perthes disease can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Legg-Calvé-Perthes disease

Living with Legg-Calvé-Perthes disease

Living with Legg-Calvé-Perthes Disease


Legg-Calvé-Perthes disease is a condition that affects the hip joint in children. It occurs when the blood supply to the femoral head (the ball-shaped top of the thigh bone) is temporarily disrupted, leading to bone death and subsequent deformity. Living with Legg-Calvé-Perthes disease can be challenging, but with proper management and support, individuals can lead fulfilling lives. Here are some important aspects to consider:



Medical Management


Proper medical management is crucial for individuals with Legg-Calvé-Perthes disease. It typically involves a multidisciplinary approach, including orthopedic specialists, physical therapists, and sometimes pain management experts. The primary goals of medical management are to relieve pain, maintain hip function, and prevent further deformity.


Treatment options may include:



  • Rest and activity modification: Limiting weight-bearing activities and using crutches or a wheelchair can help reduce stress on the affected hip.

  • Physical therapy: Specific exercises and stretches can help improve hip range of motion, strengthen surrounding muscles, and maintain joint function.

  • Bracing: Wearing a brace or cast can help support the hip joint and prevent further deformity.

  • Surgery: In some cases, surgical interventions such as osteotomy (reshaping the bone) or joint replacement may be necessary to correct severe deformities or alleviate pain.



Pain Management


Pain is a common symptom of Legg-Calvé-Perthes disease, and managing it effectively is essential for a better quality of life. Here are some strategies to consider:



  • Medications: Over-the-counter pain relievers or prescribed medications can help alleviate pain and reduce inflammation. Always consult with a healthcare professional before taking any medication.

  • Physical therapy: Targeted exercises and stretches recommended by a physical therapist can help relieve pain and improve joint mobility.

  • Heat and cold therapy: Applying heat or cold packs to the affected area can provide temporary pain relief.

  • Alternative therapies: Some individuals find relief through complementary therapies like acupuncture, massage, or chiropractic care. Discuss these options with your healthcare team.



Emotional Support


Living with Legg-Calvé-Perthes disease can be emotionally challenging, especially for children. It is important to provide emotional support and create a positive environment. Here are some suggestions:



  • Open communication: Encourage open and honest communication about feelings, fears, and concerns related to the condition.

  • Support groups: Joining support groups or connecting with others who have Legg-Calvé-Perthes disease can provide a sense of belonging and understanding.

  • Therapy: Consider individual or family therapy to address emotional challenges and develop coping strategies.

  • Education: Learn about the condition together as a family to better understand its impact and how to manage it effectively.



Lifestyle Modifications


Adapting certain aspects of daily life can help individuals with Legg-Calvé-Perthes disease maintain their independence and minimize discomfort. Here are some lifestyle modifications to consider:



  • Assistive devices: Use assistive devices like crutches, walkers, or wheelchairs to aid mobility and reduce strain on the affected hip.

  • Home modifications: Make necessary adjustments at home, such as installing handrails, ramps, or shower seats, to ensure a safe and accessible environment.

  • Regular exercise: Engage in low-impact activities recommended by healthcare professionals to maintain overall fitness and joint health.

  • Healthy diet: Eating a balanced diet rich in nutrients can support bone health and overall well-being.



Living with Legg-Calvé-Perthes disease requires patience, perseverance, and a supportive network. By following proper medical management, effectively managing pain, seeking emotional support, and making necessary lifestyle modifications, individuals can lead fulfilling lives despite the challenges posed by this condition.


Diseasemaps
3 answers
Während der Behandlung (bis zu fünf Jahren) muss man mit starken lebenseinschränkungen rechnen. Das spätere Leben richtet sich nach dem Ausheilungsergebnis.

Wer umfangreiches und wertvolles Erfahrungswissen aus mehreren tausend Fällen benötigt, kann gern auf www.morbus-Perthes.de oder www.morbus-perthes.org Kontakt zu mir aufnehmen. Mein Name ist Wolfgang Strömich
You just have to find adequate pain relief. Sorry, there’s not much you can do.

Posted Mar 18, 2019 by Michael 2550

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Hi, I'm John, When I was 10 years old, in 1975, I was diagnosed with Legg Perthes.   I had a tough time with Legg Perthes as I was a bit too old for any real regrowth and recovery. I have walked with a limp my whole life since Legg Perthes visite...
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My son Jesse is age 9 and has Perthes In his Left hip, he was diagnosed over two years ago and is finally started walking again over the past two months after being in a broom stick cast for 3 months and a wheelchair for 18 months. Things are looking...
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Comencé teniendo dolor en la pierna derecha, en algunos casos no pude caminar por un tiempo. Paralelamente comencé a cojear por lo que visite diferentes médicos que lo diagnosticaron como un problema muscular. Finalmente, a los 8 años me sacaron ...

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Hi! My name is Melina Morilla, I'm 16 years old, I'm from Arenys de Mar(Barcelona, Spain) and I'm doing secondary studies. I have to do a work and I decided to do it about Perthes disease, because I suffered from it. I would like to know if I could s...

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