Stories of Lesch-Nyhan Syndrome

Lesch-Nyhan Syndrome stories
Hi All,  This is crystal stovall, I have a son named Glennden with lns, I also Had a brother named James whom passed at the age of 29 with lns. Glennden is 10 years old and was diagnosed at 6 months of age.  His First extraction of his tee...
Lesch-Nyhan Syndrome stories
Hi my son Jack who is 3 was diagnosed with lns in January 2017. He is a bright little boy who makes anyone he comes across smile. His daily meds include allpurionol, potassium citrate, gabenpentin, and sleeping tablets as he is the worst sleeper.&nbs...
Lesch-Nyhan Syndrome stories
Hi my son is Nicky he was diagnosed with lns at the age of 3. He is a wonderful child whose world is pretty much dominated by lns. He's had dbs which helps a great deal but we do still struggle.

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Statistics of Lesch-Nyhan Syndrome

0 people with Lesch-Nyhan Syndrome have taken the SF36 survey. Mean of Lesch-Nyhan Syndrome is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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