speech, occupational and physical therapy helps improve clinical symptoms
Os meus filhos
Symptoms began in 2010 when I was 3 and a half years old
Adulte Form
positive attitude
My Facebook page "Corey's Light " ..keeps prayers going and helped us connect with other Leukodystrophy families
A daily mixture of Neurontin,Naproxen and Paracet to help with the faical nerv pains. Oxynorm also helps if the pain is more increased
Asea
Make memories every day.
Diet and natural remedies
Humanização
Positive attitude
I avoid peanuts and other foods high in Very Long Chain Fatty Acids.
Friends
Connect with other families
Stress will come and go, its always hard to see that it will pass.... but it will
Friends & family
HC 3xday and Fludro 1xday
Finally being able to talk about my boy.
Soft blankies
Exercise
Lennon has a wonderful Team of Dr's
CBD oil and medications to regulate hormones
daily physical activity helps improve balance issues
A minha irmã Leornor e a minha mãe
Betroffen seit Februar 2022