A Lichen Sclerosus interview , Apraxia.

Judithe's interview


How did all start?

From eczema at back of neck. Found out I had one in vuva which no cancer and gone.the back of neck is now full of white bump’s skin discoloration and I’m not even wanting to go out. I m not sure if I now have bumps in my face????

Do you already have a diagnosis? How long did it take you to get it?

It took me 5 dermatologists and me researching myself. Finally I went to a( hemorrhoid Dr who finally told me. I trust i dermatologists now.

For what medical specialties have you been treated? What has been the most useful specialty for your?

Have no clue

What has been the most useful thing for you so far?

Nothing except hopefully the stem cells I m am having will help.

What have been your biggest difficulties?

Every single part of this horrid Litchen simplex …..

How has your social and family environment reacted? Have your social or family relationships changed?

They want to help though no one had heard of this before. Everyone is supportive

What things have you stopped doing?

I’ll never wear my hair up again and when I have to go to Maui each year, I will bever leave the hotel not at home ever go anywhere when it’s warm. I’ll never wear anything that shows these marking.I’m sure I’ll stop Ali it more

What do you think about the future?

Grim at this Pt. I am hoping that the stem cells in my face and neck will help. I’ve had it before , for dark circles

So far, which years have been the best years in your life? What have you done during them?

Most of them until now.raising my children, grandchildren, acting, Artist, creative writer, and my wonderful husband. Now we are dealing with prostrate cancer though he’s in a fabulous trail at Cedars-Sinai so we are very confident.

What would you like to do if you didn’t have your condition?

Still know I was pretty. Act again, enjoy the life I’m lucky enough to have and now haven’t been able to appreciate it. Continue my volunteer work outside! A lot!!

If you had to describe your life in a sentence, what would it be?

So sad that I’m not enjoying the incredible Life I am so lucky to have been given.

Finally, what advice would you give to a person in a similar situation?

I wish I knew!!

Interview Lichen Sclerosus

May 4, 2022

By: Judithe

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